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Wednesday, May 05, 2021

SPM and SPM-2 Quick Tips Case Study: What’s Behind Challenging Behaviors in the Classroom?

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    If you identify learning disabilities, diagnose oral language conditions, or teach children to read, phonological processing and phonemic awareness are important in your work. It’s vital to understand each skillset, how they’re assessed, and their impacts on learning and literacy.  

    Here’s what to know about these separate but related capabilities. 

     

    What Is Phonological Processing? 

    Phonological processing is a group of thinking skills that includes these abilities:  

    • phonological awareness – the ability to notice, recognize, and work with speech sounds 
    • phonological memory – the ability to hold speech sounds in mind as you’re completing tasks 
    • rapid automatized naming – the ability to quickly, accurately recall information you’ve heard 

    These skills work together to make it possible for people to learn language, to decode and spell words, and to tell the difference between speech sounds. People use phonological processing when they rhyme or use alliteration, when they break sentences into words, and when they break words into syllables.

     

    What Is Phonemic Awareness? 

    Phonemic awareness is a subset of phonological processing skills. Phonemic awareness is the ability to identify and work with the individual sounds within words (phonemes). In English, there are 44 separate phonemes.  

    Phonemic awareness includes these abilities: 

    • isolating sounds, or identifying individual sounds within a word 
    • blending sounds together to make a word 
    • segmenting sounds, or breaking a word into its individual sounds 
    • deleting, adding, or substituting sounds, such as replacing the /c/ sound with the /b/ sound to make the word “cat” into “bat.” 

    Phonemic awareness is considered the most advanced aspect of phonological processing. 

     

    Common Questions for Reading Professionals 

    What’s the role of phonological processing and phonemic awareness in reading? 

    Being able to hear and process speech sounds is very important as we learn to read. When we read, we look at letters. We match the letters to a sound we have heard. Then we blend the sounds into whole words.  

    In the early stages of learning to read, the process of mapping a letter to a sound is slow. It takes effort. That’s because we’re literally building pathways between the part of our brain that sees and recognizes letters to the part of our brain that hears sounds, and from there to the part of our brain that stores the meanings of words.  

    The more we read, the quicker we get at moving from letters to sounds to words. For some people, this process becomes automatic. For others, the brain pathways don’t form as easily. Something disrupts the brain’s ability to connect letters to sounds to words. Often, the difficulty lies with phonological processing or phonemic awareness. 

     

    Learn more about phonics and the Science of Reading: Reading Assessment Resources 

     

    What co-occurring conditions affect phonological processing and phonemic awareness? 

    Several neurodevelopmental conditions can affect phonological processing and phonemic awareness, influencing the way students process word sounds, including: 

    • attention deficit/hyperactivity disorder (ADHD), 
    • auditory processing disorder (APD),  
    • developmental language disorder (DLD), and 
    • dyslexia. 

    It’s possible to have more than one of these conditions at a time, making it harder for clinicians to tell where the effects of one condition stop and another starts (Bonti et al., 2024).  

    People may also have other health conditions that disrupt phonological processing or phonemic awareness. For example, people who have had strokes or traumatic brain injuries sometimes have trouble with phonological processing afterward (Lice et al., 2024).  

    Here’s a brief look at how these conditions may affect someone’s phonological processing and phonemic awareness.  

     

    Condition
    Phonological Processing
    Phonemic Awareness
    Difficulties You May See
    DLD
    • Rhyming
    • Perceiving speech in noisy areas
    • Rapid naming
    • Identifying, adding, or omitting phonemes (Sepúlveda et al., 2022)
    APD
    • Perceiving speech in noisy areas
    • Noticing and remembering sound sequences
    • Identifying phonemes
    • Decoding words or linking letters to sounds (Drosos et al., 2024)
    Dyslexia
    • Reading or repeating pseudo words & real words
    • Identifying syllables
    • Reading with or recognizing prosody
    • Retrieving words from short term memory
    • Segmenting phonemes
    • Reading written words
    • Adding, blending, or deleting phonemes to words or pseudo words (Schwarz et al., 2024)
    ADHD
    • Recalling verbal information
    • Omitting or transposing word sounds
    • Identifying phonemes
    • Learning new words (Roberts et al., 2023)

     

    Interested in learning more? Read "Is It DLD or Dyslexia?".  

     

    What Are the Practice Implications for a Multidisciplinary Team? 

    Speechlanguage pathologists (SLPs) frequently assess phonological processing as part of a comprehensive evaluation when a patient or student has a possible language delay, auditory processing disorder, or phonological disorder. They may also play a role in evaluating students for reading readiness.  Assessing phonological skills can also help an SLP decide whether an augmentative alternative communication (AAC) device could help a student communicate more clearly or build better grammatical skills (Lorang et al, 2022).  

     

    Assessment Tip 
    Early intervention is key, whether phonological deficits are affecting speech and language development or reading readiness. The Phonological and Print Awareness Scale (PPA Scale™) can be used to measure these skills in children as early as 3 years, 6 months. The Arizona Articulation and Phonology Scale, Fourth Revision (Arizona™-4) can be used with children as young as 18 months.

     

    School psychologists and reading specialists may assess phonological processing and phonemic awareness as part of universal screening for dyslexia and reading difficulties in kindergarten. In some cases, school psychologists might need to differentiate between phonological processing issues and speech difficulties. These professionals might also delve more deeply into assessment when a student is at risk for dyslexia or other reading disorders.  

     

    Assessment Tip 
    The Tests of Dyslexia (TOD®) is a comprehensive dyslexia assessment. It includes a screening tool along with a broader series of assessments to measure 21 skills and abilities related to phonological processing, phonemic awareness, and dyslexia. It can be used with students as young as 5 years old, and with adults up to age 89 years, 11 months. 

     

     

    Key Messages

    Phonological processing is the ability to perceive, remember, and manipulate speech sounds. Under the broad umbrella of phonological processing is a subset of skills known as phonemic awareness. These skills allow people to detect, recognize, and work with the sounds that make up words.  

    Phonological processing and phonemic awareness are necessary for reading. They allow people to match letters to sounds and to blend sounds together to form words. Some neurodevelopmental conditions interfere with these abilities, especially dyslexia, developmental language disorder, auditory processing disorder, and ADHD.  

    If a student or client has trouble with phonological processing or phonemic awareness, it’s important to assess comprehensively so you can identify which skills may be impaired and which are intact. When SLPs, school psychologists, OTs, and educators work together using specialized assessments, they can create a holistic understanding of the student’s or patient’s needs—which makes planning effective, evidence-based interventions so much easier.  

     

    Download our most popular infographic of all time: Types of Phonological Processes 

     

     

    Research and Resources:

     

    Bonti, E., Zerva, I. K., Koundourou, C., & Sofologi, M. (2024). The high rates of comorbidity among neurodevelopmental disorders: Reconsidering the clinical utility of distinct diagnostic categories. Journal of Personalized Medicine, 14(3), 300. https://doi.org/10.3390/jpm14030300 

    Drosos, K., Papanicolaou, A., Voniati, L., Panayidou, K., & Thodi, C. (2024). Auditory processing and speech-sound disorders. Brain Sciences, 14(3), 291. https://doi.org/10.3390/brainsci14030291 

    Katsarou, D. V., Efthymiou, E., Kougioumtzis, G. A., Sofologi, M., & Theodoratou, M. (2024). Identifying language development in children with ADHD: Differential challenges, interventions, and collaborative strategies. Children (Basel, Switzerland), 11(7), 841. https://doi.org/10.3390/children11070841 

    Lice, K., Matić Škorić, A., & Kuvač Kraljević, J. (2024). Word processing abilities in subjects after stroke or traumatic brain injury. Acta Clinica Croatica, 63(2), 283–299. https://doi.org/10.20471/acc.2024.63.02.4 

    Lorang, E., Maltman, N., Venker, C., Eith, A., & Sterling, A. (2022). Speech-language pathologists' practices in augmentative and alternative communication during early intervention. Augmentative and Alternative Communication, 38(1), 41–52. https://doi.org/10.1080/07434618.2022.2046853 

    Roberts, D. K., Alderson, R. M., & Bullard, C. C. (2023). Phonological working memory in children with and without ADHD: A systematic evaluation of recall errors. Neuropsychology, 37(5), 531–543. https://doi.org/10.1037/neu0000899 

    Schwarz, J., Lizarazu, M., Lallier, M., & Klimovich-Gray, A. (2024). Phonological deficits in dyslexia impede lexical processing of spoken words: Linking behavioural and MEG data. Cortex, 171, 204–222. https://doi.org/10.1016/j.cortex.2023.10.003 

    Sepúlveda, Esther & Resa, Patricia & Pulido-García, Noelia. (2022). Difficulties in phonological awareness in children and adolescents with developmental language disorder (DLD). European Journal of Education and Pedagogy. 3(5). 110-113. DOI:10.24018/ejedu.2022.3.5.462 

     

     

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    Austin Independent School District (AISD) successfully transformed its dyslexia program through the power of parent advocacy and expert intervention, offering an achievable roadmap to districts looking for dramatically improved reading results. 

    Amber Elenz, a parent-advocate, and Rachel Robillard, PhD, a school neuropsychologist, worked together to overhaul their district’s approach to dyslexia. When they began, AISD was identifying dyslexia in roughly 2% of the district’s 85,000 students. Within 5 years, that figure had risen to over 8%.  

    This rise in figures doesn't indicate an increase in dyslexia, but rather a more engaged and accessible identification process. How did they inspire and implement such a positive change? Dr. Robillard and Ms. Elenz share what worked for them—the barriers they faced, strategies they developed, and lessons they learned during their highly successful partnership.  

     

    How did this partnership begin? 

    Like so many good stories, this one starts with a child who didn’t fit in. In preschool, Amber Elenz’s son experienced many of the classic effects of dyslexia: auditory processing differences, some disruptive behaviors, and most telling, difficulty learning phonemic and phonological skills. “They would learn a new letter a week, basically. And at six weeks, they would review what they had learned. His teacher looked at me and said, ‘Amber, it was like Groundhog Day. It was like this was his first day of school and he didn't know anything.’”

     

    Download our free poster: Dyslexia Symptoms to Look for When Testing at Different Stages 

     

    Her persistence and an insightful school psychologist led eventually to a dyslexia diagnosis—but his school did not have the resources to provide needed interventions. It was a frustrating roadblock for Elenz and her son.  

    “It is the job of a school to teach a child to read,” she says. “If you don’t teach a child to read, they can’t do math. They can’t do science. They can’t do social studies. They can’t do any of the other things that compete for our attention in a school setting.” 

    Elenz worked with the school principal and PTA to obtain training for a teacher willing to become a Certified Academic Language Therapist (CALT)—a highly trained dyslexia specialist. Within 3 years, 60 children were receiving academic language therapy in that school.  

    “At that point,” Elenz says, “word got out around the city. Parents or teachers or principals would start calling me to see how I did it. And I would help each school do it. I probably worked on four different school programs before I realized that this is all great, but it needs to happen faster. We had 130 schools in our district at the time and probably 80-83 elementary schools. Everybody deserved that,” she says. 

    Elenz ran for office and was elected to the district’s Board of Trustees. She began working with Dr. Robillard, who had already transformed the district’s 504 processes and educated many school psychologists in the neuroscience of identifying and intervening with dyslexia.  

    Together, they secured support from superintendents and district officials, arranged training for educators, implemented district-wide dyslexia screening in kindergarten, expanded evidence-based interventions, and provided parents with a wealth of resources.  

    Here are 6 strategies they used along the way. 

     

     

     

    1. Build awareness of dyslexia and how to address it.  

    For many schools, the first barrier to a schoolwide dyslexia program is a lack of understanding about the nature and characteristics of dyslexia. Misconceptions exist everywhere, from administrators to school board officials to classroom teachers.  

    “The first thing you need is a common understanding of what dyslexia is and what it is not—it’s not just mixing up your numbers and letters, which is what 90% of people think. Once you have that common understanding, people are willing to work with you,” Elenz says. 

    Elenz and Dr. Robillard focused first on the people who could make decisions about programs and funding: school board members. “I did training for the board on what dyslexia is, and what the biological underpinnings are, and what you need to do to identify and treat it,” Dr. Robillard says. “I ended up having to go back several times to field questions from them about where the money was going and why it was going there.”  

    It was also important to ensure that superintendents, special education directors, and school administrators understood dyslexia’s impacts, because school officials are sensitive to the ever-increasing demands placed on schools and educators. They may also be reluctant to change established roles, methods, or processes.  

    “Schools are, as always, pulled to the four corners,” Dr. Robillard says. “You have to start with getting your administrative team on track to understand what this is because the research tells us that where go-eth your principal, go-eth you. If you have an administrative team that understands this is an issue and correcting it is do-able, you’re going to set the tone for the rest of the school to get on board with it,” she explains. 

    Elenz agrees. When board members, district administrators, and educators are aligned, change happens. “People then prioritize teacher time,” she says. “They prioritize hiring. They prioritize resources and budgeting. Everything happens from that level of understanding.” 

     

    2. Train teachers in pre-K through 2nd grade to recognize common signs of dyslexia.  

    Classroom teachers—especially those in preschool, first, and second grades—are well positioned to notice the early indications of dyslexia. Training them to recognize its characteristics is vital.

    “Can this four-year-old rhyme?” Dr. Robillard asks. “They don’t need to know the letters, but do they hear the sound at the beginning of the word? There are very specific dyslexia symptoms we can teach teachers to cue into, so they’re saying, ‘I’ve got to keep an eye on this one or that one.’”

    Beyond the early years, it’s important for all teachers understand dyslexia’s nature and indicators so that if a child slips through the cracks in the early years, they can still be identified later. 

     

    3. Screening and assessment are key. Start early and train your team to administer and interpret effective dyslexia assessments.  

    Texas has required dyslexia screening for decades, but it often took place in third grade, after reading instruction had taken place. Dr. Robillard, Elenz, and other educators advocated for earlier screening. 

    “When the law changed, the requirement to identify kids moved into a kindergarten or first grade space,” Elenz says. “Every kindergarten teacher had to do some kind of quick assessment with their students by the end of kindergarten or first grade. Then you had a baseline for a group of kids you would take through full testing if they continued to have difficulties.” 

    It was necessary to train school psychologists and other professionals to conduct comprehensive evaluations using tools designed to identify dyslexia. “We started putting together a battery of tests that would actually look at all the characteristics of dyslexia and do a pretty quick and dirty diagnosis,” Dr. Robillard says. “Most of my people got the testing battery down to around an hour and fifteen minutes, which was crucial because we were, clearly, way behind on identification.”

     

    4. Invest in evidence-based instruction and intervention.   

    One of the challenges Austin ISD faced was that, even when dyslexia was accurately identified, few students received effective interventions.

    “We knew that academic language therapy worked,” Dr. Robillard says. But few reading specialists and special educators were trained to provide that therapy. To close the gap, the district entered a partnership with Scottish Rite Hospital in Austin, a leader in creating materials and training aligned with Take Flight, an intense intervention for students with dyslexia.  Dr. Robillard explains, “We reached an agreement that they would come in-house and train the people who wanted to become CALTs. That’s where Amber came in. She convinced the Board to make the first-year commitment.”

    The process was slow, since only 10 educators could begin training each semester, and the full CALT training process takes two years to complete. Still, at the peak of their partnership, the number of dyslexia specialists in the Austin ISD grew from 3 to 81.

    At the same time, the district collaborated with Rawson Saunders Institute to discount training for teachers in another evidence-based program, Basic Language Skills. And they invested in an early reading intervention program, Really Great Reading, so teachers in pre-K through second grade could receive training and materials that supported early reading instruction grounded in the science of reading.

    “Helping individual schools have a very strong phonics and phonemic awareness part of their reading program, starting in pre-K, would be ideal,” Dr. Robillard notes. Such programs help reveal early signs of dyslexia. “It also offers those kids some early intervention so that even if they have dyslexia that’s moderate to severe, it’s going to arborize those neurons and build those neural pathways.” Should children need dyslexia intervention later, the groundwork would already be laid.

     

    5. Recruit your strongest allies: parents and caregivers.   

    Transforming systems takes motivated leaders. “Because of the competing agendas, beliefs, and priorities in the school district, you have to have a champion who is going to convince others that this is the number one priority,” Elenz says. She and Dr. Robillard found that parents could be some of their staunchest allies.

    Dr. Robillard visited schools, listening to parents’ concerns and bolstering their ability to advocate for their kids. Some parents worried about the stigma of a dyslexia diagnosis. Some worried that if dyslexia became the top priority, other disabilities and needs might be overshadowed. And some stepped into leadership roles.

    “Once we got parents connected at a school,” Robillard says, “we got them to lead support groups, and they took it from there…Those parent groups then showed up when things were not going as I would have liked with the Board or with a particular district, and they were very helpful in being persuasive.” 

     

    6. Collect the data and tell your story.   

    To make a compelling case for schoolwide dyslexia intervention, you will need reliable data. 

    “Data collection is really key to moving the conversation and the work forward,” Elenz says. “Otherwise, it’s all theoretical. We need people to collect the data on how many kids are struggling—we know that around 40% of kids in Texas aren’t reading at grade level—and within that 40%, there could be a lot of different reasons for the difficulties.” 

    Once you have the numbers in hand, it’s important to tell the story in simple, straightforward language.  

    “I’ve done a lot of work in this space,” Elenz says. “I think I was able to be a little more successful because I talk ‘ParentSpeak.’ Parents, teachers, and even board members may get a little lost in the medical and educational jargon that we tend to use.” 

    One other tactic Elenz found effective was showing people pictures of what happens in the brain when someone reads, and what that process looks like when someone is struggling to read. “That was game-changing in our conversations,” she says. “Take those pictures with you everywhere you go when you’re trying to explain this to people.” 

     

    Key Messages  

    In every classroom, rural and urban, public and private, there are students struggling to read. For some, like Amber Elenz’s son, dyslexia is the reason. It’s possible to create a schoolwide program that makes a genuine difference for children with dyslexia—but it takes time and a considerable investment in resources.  

    “I know from experience that when teachers, schools, and districts properly address dyslexia, student outcomes in reading improve, as do their outcomes in all other subject matters, as well as discipline issues and mental health, just to name a few. Investing in one very specific set of actions, you will see positive returns in a multitude of measurable areas around student, school and district success,” Elenz says. 

    It starts with a common understanding of dyslexia, its characteristics and effects. It involves regularly screening every child, starting in kindergarten, and providing all students with evidence-based instruction. Well-trained educators can learn to spot the signs of dyslexia, multidisciplinary teams can use comprehensive dyslexia assessments to identify the condition, and dyslexia specialists can provide therapy.  

    Transforming a school’s or a district’s approach to dyslexia is a weighty and worthwhile endeavor.  “We know the kids are struggling to read,” Elenz concludes. “We know what works. Let’s fix it.” 

     

    Related links from WPS:

     

     

     

    Research and Resources:

     

    Elenz, Amber. Personal Interview. (January 21, 2025). 

    Robillard, Rachel. Personal Interview. (January 30, 2025). 

     

     

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    Adaptive behavior assessments are often included in evaluations for neurodevelopmental conditions like autism, intellectual disability, and attention-deficit/hyperactivity disorder (ADHD). These assessments yield vital information about how a condition may be affecting someone’s social skills or daily functioning. But adaptive behavior assessments can also be an important tool in neurodiversity affirming practice. That’s because they highlight a person’s strengths, the skills that matter most to them, and the support they need to thrive in different settings. 

    Adaptive behavior assessments supply data in areas like these:  

    • Interests that spark passion, connection, and curiosity 
    • Frustrations and challenges at home, school, or work 
    • Coping skills and strategies that help or hinder 
    • Communication abilities and patterns 
    • Mismatches between people and their surroundings 
    • Routines that make it easier to function every day 
    • Emotions and skills for managing them 
    • Events that cause strong emotional or sensory reactions 
    • Relationships and social experiences 

    That kind of information is important if your aim is to co-create a support plan based on a neurodiversity affirming evaluation. It’s the kind of data researchers say is vital to capturing “the inner experience of autism” (Ratto et al., 2023).   

     

    What Is Adaptive Behavior? 

    Adaptive behaviors are the skills and abilities we need to function fully in each area of our daily lives. Typically, they are grouped into three categories: conceptual, social, and practical.  

    The conceptual domain includes communication, early academic skills, self-direction, and basic health and safety knowledge. The social domain encompasses skills that allow us to adapt the way we communicate to different people or settings, and to engage in recreational activities. And the practical domain focuses on the skills we need to take care of ourselves, to work, and to manage our finances and living environments. 

    See the domains visualized in our infographic. 

     

    Here are a few examples of adaptive behaviors in each category.  

     
    Conceptual
    Social
    Practical
    Early Childhood
    • Uses 1 or 2 words to ask for something
    • Counts 3 or more objects
    • Points to an injury or tells someone about an ache
    • Shows interest in favorite toys or activities
    • Shows sympathy to others
    • Greets people
    • Drinks from a cup
    • Chooses favorite foods
    • Sleeps through most of the night, waking no more than once or twice
    School Years
    • Responds to simple questions
    • Reads and writes their own name
    • Participates in specific fun activities
    • Names different emotions or feelings
    • Offers to help others
    • Listens to others who need to talk about problems
    • Completes a routine without reminders, such as brushing teeth before bed
    • Uses microwave oven
    • Follows safety rules at home or in public
    Adulthood
    • Talks to family and friends about favorite activities or current events
    • Finds services, information, or events online
    • Completes necessary forms
    • Engages in a hobby or creative activity
    • Notices when they or someone else is feeling scared, happy, or angry
    • Asks co-workers or supervisor questions at work
    • Uses washer and dryer to do laundry
    • Applies for a job
    • Makes appointments for health services

     

    Context Is Important 

    Skills like naming emotions, showing sympathy for and greeting people, and even choosing favorite foods may appear simple. For autistic kids, these skills may not be their target and they may not look like the skills of their peers.  

    Some adaptive skills are also dependent on class or culture. Using a washer and dryer, for example, may be hard to impossible in certain living situations. Similarly, the age at which someone might be expected to use public transportation in one community may differ from another (Boluarte Carbajal et al, 2024). The goal is not neurotypicality or uniformity. With adaptive behavior, the goal is independence and interdependence in a person's community. 

     

    Assessment Tip 
    The Adaptive Behavior Assessment System, Third Edition (ABAS®-3) is a rating scale trusted by clinicians, educators, and researchers to measure each of the key domains of adaptive behavior. The accompanying ABAS-3 Intervention Planner links each test item to a practical growth strategy, allowing your team to focus on exactly those skills that matter most to those in your care.

     

     

    Why It Matters in Evaluations  

    It’s important to understand someone’s adaptive functioning because our ability to adapt in various environments is the key to our well-being—even more so than whether we are neurodivergent or neurotypical. 

    In a neurodiversity affirming evaluation, adaptive behavior assessment is a tool for respectful, active listening. It allows you to hear from neurodivergent individuals, families, teachers, and healthcare providers exactly what practical needs exist—what is going well, and what needs more support—across every area of someone’s life. Listening is at the heart of a neurodiversity affirming model of care (Dwyer, 2022).  

     

    Identifying Strengths 

    Diagnostic assessments measure characteristics that are often described as deficits—ways that someone differs from a “norm.”  In a neurodiversity affirming evaluation, the practitioner identifies a person’s strengths as well as areas of their life where more support may be needed.  

    An adaptive behavior assessment can help you answer questions like these: 

    • What have educators noticed about how someone learns or interacts with other students? 
    • What strengths enable someone to cope, learn, and thrive? 
    • What activities, topics, and environments bring a sense of achievement, independence, or joy? 
    • What adaptations might build on someone’s communication abilities? 
    • What strengths in the family, culture, and community can support and empower the individual? 

    Identifying and supporting strengths is a key element of neurodiversity affirming care. 

     

    Can you use the ABAS®-3 with a nonspeaking student?
    Yes. The ABAS-3 measures skills across all areas of adaptive behavior, not just spoken communication, and the assessment addresses ways of communicating beyond the use of speech. In addition, the ABAS-3 allows you to gather information from multiple raters, including teachers, family members, and other professionals who know how the student communicates. Addressing the needs of nonspeaking students is part of presuming competence, a foundational principle in neurodiversity affirming care. If you’re working with young children or someone who has significant communication needs, you can further clarify communication goals by including a neurodivergent consultant on your evaluation team (Dwyer et al., 2025).

     

     

    Identifying Environmental Support Needs 

    In a conventional medical model, the focus of assessment and intervention is often on encouraging the individual to adapt to neurotypical environments—to learn neurotypical ways of behaving and communicating. For some professionals, this seems like a practical, problem-solving approach. For others, this approach may feel as though you’re asking neurodivergent people to be less authentic (Dwyer et al., 2025).  

    Increasingly, practitioners are considering a social model of disability, because it may align more closely with neurodiversity affirming practice. In a social model, practitioners look for ways that environments can be changed to better meet the needs of a neurodivergent person, instead of placing the onus for change solely on the individual.  

    Practitioners might use adaptive behavior measures and other methods to ask questions like these: 

    • Could the sensory characteristics of a classroom, home, or work environment be modified so the neurodivergent person can work and learn comfortably?
    • Can education or work processes be modified so they don’t conflict with neurodivergent needs?
    • Can educators, peers, and families be educated so they understand and accept neurodivergent needs and ways of being?
    • Can communication devices make it easier for neurodivergent people to communicate their needs and wishes? 

     

    Identifying Priorities

    One of the key principles of neurodiversity affirming care is that goals and interventions should be developed with input from the neurodivergent individual. Researchers in one autism study explained it this way: “Autistic people should be given the opportunity to make informed choices about what their interventions are, what they do, and what they target” (Lerner et al., 2023).  

    Adaptive behavior assessments can be the starting point of a conversation about which skills will be most meaningful to the individual. Often, the important skills are those that allow a person to participate in the activities and occupations that bring them the most satisfaction (Morrison et al., 2025).  

    In a neurodiversity affirming evaluation, goals and interventions focus on empowerment and authenticity, rather than on compliance with neurotypical standards. Goals and interventions should aim to promote greater autonomy, self-advocacy, and interdependence. One group of autism researchers said, “Most individuals aim to live fulfilling lives enmeshed in a supportive environment with others on whom they can rely for support and vice versa; autistic individuals are no different. Indeed, what is social success, if not the ability to offer reciprocal benefit and support to one’s family and community? Interdependence exemplifies such success” (Lerner et al., 2023). 

    Adaptive behavior assessments may spark questions like these:  

    • What occupations or activities could promote greater well-being? 
    • What barriers are preventing someone from participating in preferred activities and occupations? 
    • What adaptive skills are top priorities for the individual and the family? 
    • What supports and accommodations could improve someone’s ability to connect with others in the community?
    • What skills and adaptations could reduce the need for masking and lower the chances of burnout? 

     

    Key Messages 

    Adaptive behavior assessments can be a useful component in a neurodiversity affirming evaluation. They can help you identify strengths, set meaningful goals and priorities, remove barriers, and provide support that enables neurodivergent people to pursue more of the occupations and skills that bring them joy and interdependence. If you’re including an adaptive behavior measure in a comprehensive evaluation, it’s a good idea to focus on listening, and to choose assessments that suit the goals and traits of those in your care.  

    Learn more about adaptive behavior assessment

     

     

    Research and Resources:

     

    Boluarte Carbajal, A., Chávez-Ventura, G., Cueva-Vargas, J., & Zegarra-López, A. (2024). Assessment of adaptive behavior in people with intellectual disabilities: Design and development of a new test battery. Heliyon, 10(10), e31048. https://doi.org/10.1016/j.heliyon.2024.e31048 

    Dwyer, P., Gurba, A. N., Kapp, S. K., Kilgallon, E., Hersh, L. H., Chang, D. S., Rivera, S. M., & Gillespie-Lynch, K. (2025). Community views of neurodiversity, models of disability and autism intervention: Mixed methods reveal shared goals and key tensions. Autism, 29(9), 2297–2314. https://doi.org/10.1177/13623613241273029 

    Dwyer P. (2022). The neurodiversity approach(es): What are they and what do they mean for researchers? Human Development, 66(2), 73–92. https://doi.org/10.1159/000523723 

    Lerner, M. D., Gurba, A. N., & Gassner, D. L. (2023). A framework for neurodiversity-affirming interventions for autistic individuals. Journal of Consulting and Clinical Psychology, 91(9), 503–504. https://doi.org/10.1037/ccp0000839 

    Morrison, C., Cashin, A., & Foley, K. R. (2025). Daily living skill support for autistic people through a neurodiversity-affirming practice lens. Australian Occupational Therapy Journal, 72(2), e13002. https://doi.org/10.1111/1440-1630.13002 

    Ratto, A. B., Bascom, J., daVanport, S., Strang, J. F., Anthony, L. G., Verbalis, A., Pugliese, C., Nadwodny, N., Brown, L. X. Z., Cruz, M., Hector, B. L., Kapp, S. K., Giwa Onaiwu, M., Raymaker, D. M., Robison, J. E., Stewart, C., Stone, R., Whetsell, E., Pelphrey, K., & Kenworthy, L. (2023). Centering the inner experience of autism: Development of the self-assessment of autistic traits. Autism in Adulthood: Challenges and Management, 5(1), 93–105. https://doi.org/10.1089/aut.2021.0099 

     

     

  •  

    Some years ago, school psychologist Breea Rosas, EdS, NCSP, LEP asked a parent if she had reviewed the report describing her child. With a note of resignation in her voice, the parent replied, “I looked over it and saw that he was low across the board. But don’t worry, I stopped crying about these reports a long time ago.”   

    Rosas recalls feeling “broken” by the parent’s response to the report. She saw the child, who had Down syndrome, as “an awesome kid with so many skills”—yet the report focused chiefly on his assessment performance, comparing his scores to those of other children his age. “There’s a better way,” she remembers thinking.  

    Moments like that one led her to pursue a different kind of practice—one that focused more on strengths, affirming the broad range of characteristics and capabilities within each of her students. Rosas is not alone. More and more clinicians and educators are moving toward a more neurodiversity affirming approach to care.  

     

    What Is a Neurodiversity Affirming Approach?  

    A neurodiversity affirming approach is one that recognizes neurodivergence as a natural variation in brain function and human experience. From a neurodiversity affirming perspective, autism, ADHD, dyslexia, and other types of neurodivergence are not seen as disorders to be cured or erased, but as unique brain styles to be appreciated and supported. Neurodiversity affirming practices are increasingly common among clinicians and educators.  

    “The very core of it is honoring lived experiences and acknowledging that neurodiversity is part of life,” Rosas says. “Instead of making people feel bad about their disabilities and differences, we should be embracing, empowering, and supporting people who have brains and behaviors that are different than ours.”  

     

    How Can We Become More Neurodiversity Affirming? 

    Here are three strategies Rosas recommends for creating a more neurodiversity affirming experience. 

     

    Listen to neurodivergent perspectives.  

    A key component of neurodiversity affirming care is valuing the viewpoint and priorities of the individual at the center of the evaluation. In practice, that involves conducting lots of observations and interviews. If it’s developmentally appropriate, practitioners can talk to students about their needs, interests, and priorities.  

    “Sometimes you get input from what you observe in a setting,” Rosas says. “What kinds of things are they gravitating towards? If you’re working with a fifth grader, you’re asking, ‘What do you think about these goals for your IEP?’ It’s asking parents what their priorities are for their kids.” 

    At times, practitioners must balance a child’s desires with the caregiver’s. “If a parent says, ‘I want my kid to play with the other kids at recess,’ and the kid doesn’t want to do that, you have to find the middle ground there,” Rosas says. 

     

    Carefully consider which assessments are right for the situation. 

    Rosas prefers to conduct comprehensive evaluations rather than testing for an isolated condition or academic skill set.  

    “Doing comprehensive evaluations is always better, because we get the whole picture of what is going on with the kid,” she explains. “If you’re only looking at dyslexia, then you’re looking at deficits in reading, in phonological processing, in orthographic processing, in rapid automatic naming. If we’re just looking at dyslexia, we ignore the other academic strengths, cognitive strengths, social strengths, grit, determination, motivation, and those character strengths.” 

    Rosas often collaborates with other educators to select assessments with the student’s characteristics in mind. “As a school psychologist, you’ll have special ed teachers come to you and ask what tests they should give, so it’s important to have a good understanding of academic tests, even if you don’t give them,” she says.  

    It’s also important to have a sense of a student’s attention span and language needs so you can select assessments that not only measure skills related to referral concerns, but that are a good fit for the student. “A lot of times people get stuck giving the exact same battery every time because it’s easy to do the ‘plug & play,’” she notes.  

    In a neurodiversity affirming evaluation, practitioners consider the time it takes to complete an assessment, the language load of the assessment, and whether the tasks involved are appropriate for the individual. In a study published in 2025, researchers interviewed autistic adults about the diagnostic process they had experienced. They emphasized “the importance of adopting a personalized approach to diagnostic assessments,” especially when the tasks involve play (Pritchard-Rowe, et al., 2024).

     

    Focus equally on strengths, differences, and needs.  

    Criteria in diagnostic manuals such as the International Classification of Diseases, 11th Revision (ICD-11) and The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, Text Revision (DSM-5-TR) are often framed as deficits or as behaviors that diverge from a neurotypical norm. Neurodiversity affirming practitioners widen the lens so there’s room to see an individual’s strengths. A shift toward strengths-based evaluations is taking place among researchers and practitioners across the globe. Researchers at the Karolinska Institute in Sweden are partnering with U.K.-based Autistica to create the International Classification of Functioning, Disability and Health (ICF), a toolkit for use in schools, workplaces, and healthcare settings. The ICF emphasizes the need to identify strengths as well as needs (Ferreira, 2025). 

    Additionally, neurodiversity affirming practitioners may reframe “deficits” as areas where an individual needs support.  

    “It’s okay to say to say that someone has significant support needs—that someone’s needs are significant compared to same-age peers,” Rosas points out. “Disability isn’t a bad word. Support needs are not wrong. A lot of people think those things are opposing views, but they go hand in hand. As neurodiversity affirming providers, we don't want to ignore support needs; that’s the opposite of what we want. We want to identify significant support needs. We are going to support them.” 

    Once support needs have been identified, Rosas considers the individual’s environment. Addressing any mismatch between a person’s environment and their support needs is an important element of neurodiversity affirming practice (Dwyer, 2022).  

    “I just started in a new position in a new district, and I’m working with students who have extensive support needs,” she says. “I’m going into classrooms without any context outside of their IEPs. Kids are having behaviors. And I’m saying, what can we change in the environment? Where’s the weighted blanket? Where are the communication devices? We need to pull these things in. That’s my first thought: What in the environment can be changed? Then we look at real, meaningful skills we want to build.” 

    Learn more: Creating Autism Friendly Spaces 

     

    Writing reports is another opportunity to focus on strengths, differences, and needs. In her reports, Rosas aims to share a holistic view of the student. She says, “I hope that the parents read it and smile, and say, ‘That’s my kid.’ I hope they see their kid in the report and feel good about it.”  

    Often, she pens a letter to the student directly, explaining, “This is what’s going on in your brain. This is what we found out in assessment. Here are some things you’re good at. Here are some things to help you in school and in life.” 

     

    Key Messages 

    Neurodiversity affirming practices are becoming more common—and shifting to this paradigm takes time and dedication. A few simple steps can make a big difference: listening to neurodivergent perspectives, choosing assessments that align with the individual, and using language that focuses on strengths, differences, and needs. 

    These steps may be challenging, but there’s growing evidence that they lead to greater satisfaction, not only for students and families, but for the clinical and educational professionals involved.  

    “Before I started diving into neurodiversity affirming practices, I don’t think I was as passionate,” Rosas says. “It feels really cool to see a kid through this lens—to have parents see that you get their kid. There is nothing more rewarding.” 

    Learn more: How to Create a More Neurodivergent Affirming Evaluation 

     

     

    Research and Resources:

     

    Dwyer P. (2022). The neurodiversity approach(es): What are they and what do they mean for researchers? Human Development, 66(2), 73–92. https://doi.org/10.1159/000523723 

    Ferreira G. J. (2025). Commentary: Toward a more comprehensive autism assessment: The survey of autistic strengths, skills, and interests. Frontiers in Psychiatry, 16, 1552960. https://doi.org/10.3389/fpsyt.2025.1552960 

    Pritchard-Rowe, E., de Lemos, C., Howard, K., & Gibson, J. (2025). Autistic adults' perspectives and experiences of diagnostic assessments that include play across the lifespan. Autism, 29(1), 64–75. https://doi.org/10.1177/13623613241257601 

    Rosas, Breea M. Personal Interview. August 20, 2025. 

     

     

  • The original posting date was on 1/07/25 with an update on 7/07/25.

     

    Talking with families about a child's disability can be deeply rewardingand a real challenge. Clinical, educational, and legal jargon can clutter the conversation. Processes and timelines can be confusing. Cultural and language differences add barriers. And then there's the emotional content, which can color the whole experience for participants for years to come. Yet despite the challenges, family conversations can be rich, fun, and productive for everyone. 

    How can we communicate with parents so that the conversations feel less oppressive and more supportive?

     

    Parent-Practitioners Share Their Unique Perspectives

    Kristi Godfrey-Hurrell, PhD, adopted a child who’d been born with neonatal abstinence syndrome. An assistant clinical professor of Special Education & Child Development at the University of North Carolina, Dr. Godfrey-Hurrell knew she needed educator input for an upcoming evaluation. She asked a teacher to document her son’s activities throughout the school day. The two-page list she received first shocked, then saddened, then angered her—because it did not contain a single positive statement about her child.

    “I had asked a teacher to take some information down around what he was doing,” she says. “I got a list of everything he was not doing. It was really deflating.”

    That experience is not uncommon for parents of children with disabilities. For many, the assessment process in early intervention (EI) and early childhood special education focuses on the negative and is often infused with sympathy—the kind that sometimes leads a well-meaning practitioner to express condolence—“I’m so sorry about this diagnosis”—which can leave families feeling pitied rather than supported. 

    Becky Hoffman, MSE, is an experienced early intervention professional. She is currently a professional development specialist for Wisconsin’s Part C Early Intervention: Birth to 3 Program and an adjunct instructor at the University of Wisconsin-Oshkosh. She and her family also went through a lengthy diagnostic process with their son, who has a condition known as focal cortical dysplasia. Hoffman emerged from that process with a clearer understanding of how emotionally depleting the process can be for families

    Most of my years were in early intervention as an EI educator and service coordinator,” she says. “It’s different from the other side. You understand it in a different way, and you bring all the emotion as a parent to that process, Hoffman says.  One of her most important takeaways? “We don’t have to drown families in sadness and trauma when there’s a disability. 

    Second-grade teacher Holly Dregne experienced that overwhelming sensation firsthand. “Nine years ago, my son Eli was born. Within 24 hours of his birth, he lost 10% of his body weight. We were very quickly flagged as a family that needed help,” she says For weeks afterward, doctor after doctor looked for an explanation, many of them bombarding her with all the things Eli would likely never do. The experience changed her professionally and personally.

    These practitioner-parents say there’s another way. We can celebrate individuals, helping each family access the support they need while remaining connected to the myriad joys of their journey.

    Learn more about assessing early development here 

     

    The Problem With the Medical Model of Disability 

    The medical model of disability may be one of the reasons we express sympathy and pity when we encounter disability. Practitioners are trained to identify diagnostic criteria using manuals such as the DSM-5-TR and ICD-11. Diagnostic criteria are generally deficit-based, highlighting delays and differences in abilities or behavior.

    Increasingly, however, practitioners are adopting a social model of disability to guide them in professional practice. Instead of focusing on the limitations of the individual, a social model of disability addresses the ways a person’s environment contributes to their disability-related challenges.

    Ann Mickelson, PhD, is an assistant professor of Special Education & Child Development in the Department of Special Education and Child Development at UNC Charlotte. She’s also the parent of a child with a disability. Dr. Mickelson distinguishes between the medical and social models this way: The medical model is all about centering the problem in the individual. The ultimate goal is to fix what’s wrong with that individual so they’re more like everyone else, instead of thinking about fixing what’s around the individual so they can function like everyone else. 

     

    How Can We Move from Pity to Joy? 

    Like many other growth experiences, moving from pity to joy may involve letting go of stereotypes, beliefs, and assumptions about disability to make space for a genuine understanding of each child Here are a few strategies that may help you make that shift 

     

    Start with Listening

    “Listening should be the thing you start with, always,” says Hoffman. “We can listen or give pause for families to share what they want to share about their child, their day, and their family. The medical professional who diagnosed Ben with a seizure disorder starts every visit with a question: ‘What’s on your mind?’ or ‘What’s on your heart?’ We’ve stayed with him because he’s listening to us, and not just listening to count how many seizures he’s had in the last month but listening to how that impacts us.

    Listening to family stories is an excellent means of identifying strengths, resources, concerns, and priorities. It can be formalized through interviews and observations, and it can take place informally, as it did in conversations with Ben’s doctor. Practitioners sometimes call this “viewing the child through the lens of the everyday.” 

    Hoffman explains, “In Part C early intervention, authentic conversations are part of the assessment of the family—understanding that child through the context of what’s happening in their life. We’re not just asking, ‘How does your child’s inability to walk impact your day?’  We’re saying, ‘Tell us about your day.  This approach can and should be central in all assessment processes, regardless of the age of the child.

    She often thinks about how she’d get to know someone in any other context. “How would you strike up a conversation? You’d probably talk about your kids and the things you do and your activities. You might talk about something your child likes to do or things you did over the weekend.” 

    Listening in authentic conversations can identify needs early and clarify which services match a family’s priorities. “It helps people understand what’s going to help that child and family live their best lives,” Hoffman says  

     

    Balance Expertise and Connection

    Practitioners bring years of professional training and experience to each evaluation. Sharing that knowledge with families is most effective when information is exchanged in the context of a warm and authentic partnership.

    Dregne describes the need to combine family education with personal connection. “It took 16 months to get to Eli’s diagnosis, and through that time, we had people who were incredibly supportive and not that knowledgeable and people who were terribly knowledgeable and incredibly rude,” she says. “We had very few people in those first couple of months who did it all. It was either a relationship-building situation or it was an information gathering, and it was never both. That was very difficult. 

    In a research review published in 2024, researchers emphasized that families and practitioners can learn from and support each other in the early intervention process. Family education isn’t a one-way street with practitioners bearing the burden of imparting information. Families and caregivers can also educate practitioners about personal and individual factors like these:

    • goals and priorities
    • feelings and needs
    • interests and activities 
    • beliefs, spirituality, and culture
    • communication preferences
    • resources and support networks
    • obstacles and challenges  

    When information gathering and relationship building take place together, outcomes are likely to be better for families, practitioners, and children (Mestre et al., 2024).

    “If you’re a person who has lots of knowledge,” Dregne says, “be careful what you share and how you share it, because you could be crucial in our family’s journey, and you could also be horrific.

    Learn more about building authentic connections with families here 

     

    Dispel False Narratives

    The stories we tell ourselves and each other about children can change the way early intervention and other services feel for families. It’s often helpful for families when narratives begin with what a child can do, rather than what hasn’t developed yet.

    Says Hoffman, “We need to acknowledge every child's strengths and potential for growth. I like to say that the can'ts should be not yets. They might be able to do that down the road. Sometimes that small change in the way people phrase things makes a difference.

    Preconceived ideas about disability are a huge obstacle to telling more helpful stories. Dr. Mickelson says, “For me it comes back to stereotypes, interpretations, and assumptions that we’ve all been socialized to believe—that if you have a particular diagnosis you will never do something. It’s related to the layers of expectations we have for kids.”

    Those expectations affect parents, providers, and children who hear a negative story about themselves over and over again. Dr. Godfrey-Hurrell recalls how her son clamped his hands over his ears in parent-teacher meetings so he wouldn’t have to keep hearing about what he could not do. “Stop, mommy,” he told her.

    “He will purposely try to deflect or move the conversation to something else,” she says. “He gets tired of hearing the negative talk.” 

    “It’s not that we’re not wanting to address things,” Dr. Mickelson explains. “We’re going to strive, as practitioners and parents, to improve things, to build skills and build their knowledge in any of our children. It’s changing the tone of the conversation away from a list of everything that’s going wrong, shifting to ‘Here are some things that are awesome, and here are some next steps.’”

    The aim is to avoid narratives that are wholly negative, because, she says, they’re sticky. “False narratives are like Gorilla Glue,” Dr. Mickelson says Once we find something that’s the answer,’ it just sticks. The mind is no longer open to it being anything else, even if something isn’t fitting. We had a misdiagnosis, and it took a year to get past the misdiagnosis and get the appropriate treatment.

    A few of the more harmful false narratives: 

    • Children with disabilities have a lower quality of life than typically developing children. 
    • Parents of children with disabilities are continually grieving what their children might have been. 
    • Children with certain disabilities, such as Down syndrome, are always happy.

    Dr. Mickelson encourages practitioners to educate themselves about stereotypes and other forms of bias to avoid limiting people. “We need to do a lot of reflection to avoid assumptions based on stereotypes, being aware of how we’ve been socialized to think about being different, and seeing everyone as just a human,” she explains.

    Dr. Godfrey-Hurrell adds, “Allow people to tell their story the way they want it to be told.” She urges her students to be careful about asking parents to keep repeating their stories in order to get the services they need. You’re continually opening wounds they’re doing their best to mend, she notes. 

     

    Focus on the Child, Not the Disability

    Every child has a distinctive personality, unique needs, and a highly individual set of abilities and interests. Getting to know that child can invite joy into the relationship.

    “I think the real joy with practitioners comes when they connect with my child on an authentic level,” Dregne says. “A lot of people who come into our home connect with me super easily, but when they meet Eli—I mean, who is a cockroach for Halloween?but if they can get on his level and enjoy his humor, that means the world to me. That’s where the joy comes in, is seeing him through other people’s eyes.

    Hoffman agrees. Let’s look at the good stuff. Let’s celebrate my child,she says. Can we just stop for a second and talk about what they’re doing well, not just all the yucky, bad, hard stuff?”

    For Dr. Godfrey-Hurrell, it could be as simple as taking the time to notice her son’s smile or to talk about what he enjoys doing, instead of focusing on his behavior. “When a parent asks you to tell them about a child, your first thought should not be what he is not doing,” she says. “It should be that he loves to read books, or he loves to be a helper. Your first thought shouldn’t be deficit-based.

    Dr. Mickelson notes,When you actually see kids for kids, that’s what makes room for joy.”

    Finding time for this kind of holistic approach can be challenging for practitioners with large caseloads and conflicting deadlines. It’s a challenge that our particular field has to overcome, especially in special education and with medical professionals working with children who have health issues,” Dr. Mickelson says. “You’re part of that family’s and child’s life because of that disabilityWe have to work a little harder to really get at the authentic thing that’s happening for this child and family globally.”

    Learn more about whole child assessment here 

     

    Appreciate How Far You’ve Come

    One way to find joy in the early intervention process is to track and celebrate progress. Dr. Godfrey-Hurrell still has that letter her son’s teacher penned years ago, outlining all the things he could not yet do. She keeps it, both as a reminder of what not to do in an evaluation, and as a marker of how much her son has grown. 

    For our family, that has been our guiding light—to see how far we’ve come, and how much he’s overcome, and how much of a fighter he is, and how wonderful people should feel to have him in their life,” she explains.

    The same has been true for Dregne and her family. “The best part was when we proved everybody wrong. He was my third child, and he did all the same things the other two did, but he did them a lot slower and with more support,” she says. “But every time he’d do something they said he never ever would, I would think, I knew he could. It’s made me a better advocate for families.” 

     

    Key Message 

    The early intervention and early childhood special education process is an opportunity to meet families where they arecelebrating a child’s unique characteristics and planning next steps together. The process may start early with Part C, but it impacts the entire life span, families, schools, and communities. While there is certainly room for compassion when families are coping with challenges, there is also room to discover possibilities, forge genuine human connections, and experience joy.

    Disability becomes a normal part of our existence,” Dr. Mickelson says. “If it’s not a normal part of yours, realize that it is for other people. It’s not something where we wake up in the morning depressed and feeling terrible. We’re no different from any other family with other things they have to tackle that day. It’s part of the human experience.  

     

     

    Research and Resources:

     

    Dregne, H. (November 1, 2024). Personal interview.  

    Godfrey-Hurrell, K. (November 1, 2024). Personal interview. 

    Hoffman, B. (November 1, 2024). Personal interview. 

    Mickelson, A. (November 1, 2024). Personal interview. 

    Mestre, T. D., Lopes, M. J., Mestre, D. M., Ferreira, R. F., Costa, A. P., & Caldeira, E. V. (2024). Impact of family-centered care in families with children with intellectual disability: A systematic review. Heliyon, 10(7), e28241. https://doi.org/10.1016/j.heliyon.2024.e28241

     

     

  •  

    Developmental language disorder (DLD) or language disorder, is a neurodevelopmental condition that makes it harder for people to understand and use language. It first appears in early childhood and lasts into the adult years—and it affects nearly every area of a person’s life, from education to employment to relationships to mental health.  

    If we want to minimize the impacts of DLD, it’s important to learn more about what it can look like day-to-day in different people. We can listen to those who live with DLD and who’ve spoken candidly to researchers in the field.  

     

    By some estimates, DLD is one of the most common developmental disorders, and one that sharply raises the possibility of difficulties in learning, social relationships, and mental health. Its early indicators include a delay in using gestures to communicate, limited vocabulary of spoken and understood words, difficulties in understanding syntax, and an absence of two-word combinations at 30 months old. DLD seems to be more common in male children (Sansavini et al., 2021). 

     

    What Does DLD Feel Like? 

    Though it can be a real challenge to put their feelings into words, people with DLD can and do describe their experiences in powerful, moving terms. Here’s what a few children and teens had to say about what it feels like to have DLD.

    “Like you’re losing words” 

    Speaking to Swedish researchers, a group of 23 teens talked about how hard it is not to be able to “find the right words,” tell one word from another, or “put the words in the right order.”  One 16-year-old girl said she had trouble expressing herself because “the words get wrong in my mouth, sort of…the word order gets sort of wrong” (Ekström et al., 2023).  

    “I speak pretty chaotically” 

    In the same Swedish study, a 13-year-old boy discussed the mismatch between what he meant to say and what he actually says. “I speak pretty chaotically,” he told researchers. “I talk about something, and then I jump to something else, then something else. Sometimes I go back to the first, in some strange way, and then back to something else” (Ekström et al., 2023).  

    Studies show that when people with DLD share information in a narrative form, their storytelling may: 

    • be shorter and simpler; 
    • have less fluency or cohesion; and 
    • contain more grammar errors (Janssen et al., 2024). 

     

    What Are the Mental Health Effects of DLD? 

    The relationship between mental health and DLD is a complex one. Having a language disorder can cause stress, anxiety, loss of self-esteem, a sense of isolation, and depression symptoms. In some cases, language disorder occurs alongside anxiety disorder or major depressive disorder. And in yet another twist, anxiety and depression can alter the way people communicate.  

    Children, teens, and adults have explained their feelings to researchers in several recent qualitative studies.  

    “I’m also really scared...”  

    Anxiety is a constant for many people with DLD—and stress can make it even harder to communicate. What anxiety looks like can vary depending on the individual.  

    Thumb-sucking is a comfort mechanism for some younger children. Clinging to the safe predictability of routines is another common coping strategy. Other children may act silly or grumpy to avoid having to engage in conversation. One mother observed, “I think it’s a sort of protection thing so he’s not expected to respond or participate…He tries to come across as really unapproachable so people will leave him alone” (Burnley et al., 2024). 

    Some students with DLD worry about having to speak up in class or in group social situations. Often, the stress is enough to keep them silent. “I don’t know, but I’m also really scared that I will say the wrong words,” 15-year-old Yvonne acknowledged. “I get so nervous.” 

    One student said anxiety kept her from being able to “get hold of” the words, while another said when she felt nervous “the words come really weirdly” (Ekström et al., 2023).  

    Alleviating anxiety and providing adequate classroom communication support is vital because anxiety and depression are part of the DLD experience for many people. A comprehensive study that included over 46,000 Scandinavians found that adults with DLD scored lower on measures of mental health than those without the condition (Nudel et al., 2023).  

    “It knocked my confidence a lot.” 

    Low self-esteem is a frequent consequence of language difficulties, and it tends to persist into the adult years. When Meghan, a study participant, looked back at her school years, she remembered feeling different from other students. “Seeing people getting the praise for doing like exams and things, wishing you could be like that…It really pulled me down, like I’m not good enough…It knocked my confidence a lot” (Burnley et al., 2023). 

    Another adult recalled, “I recognized I wasn't doing as well as my peers and took on teacher’s perception that I was lazy, (all reports said I must 'try harder') until I saw a psychologist during my Yr. 11 who helped my MH [mental health]/self-esteem” (Wilmot et al., 2024). 

    For some, the period before they received a DLD diagnosis was especially hard. One adult observed:

    I think it is so much worse when your needs are not identified—feeling like your misunderstood, no one understands you, you don’t understand yourself, there is something wrong with you, self-hatred, negative thoughts, self-criticize, self-conscious, believing all the unkind comments and judgement from others, feeling confused / lost / helpless, angry, mixed emotions (Wilmot et al., 2024).

    Over time, such thoughts and feelings can lead to symptoms of depression. In fact, some studies indicate depression symptoms may start as early as preschool (Koyuncu et al., 2024). 

    “She is just so overwhelmed.”  

    A typical school day or workday presents so many challenges for a person with DLD. In addition to facing language tasks related to academic learning, a student might face situations like these: 

    • having trouble interpreting the other people’s intentions 
    • feeling unable to express thoughts and emotions 
    • being left out of social interactions or actively bullied by peers 
    • needing to focus intently on non-verbal cues and visual information to function 

    Sometimes, people create their own strategies for coping with ongoing stress. Luisa, 37, said art was her go-to response. “I was not able to express myself really…I might have done it through drawing…I think [that] was a way to, you know, filter the emotions and help me to calm down.” Other people cope with daily stress by choosing solitude. Farah, 40, explained, “When I was alone, I was super happy.”  Farah called this intentional solitude-seeking the ability to “bubble up” (Burnley et al., 2024).  

    When these coping mechanisms don’t adequately dissipate anxiety, stress piles up. The result can be a meltdown, an anxiety or panic attack, or a sense of utter depletion. One parent described it this way:  

    (A panic attack) might have been triggered by sheer exhaustion because…it takes so much more of his energy to get through a day at school than other typical chil[dren]…I think that was a major thing during the past six months that led to this huge panic attack.

    –Sanne, speaking of 9-year-old Elias (Burnley et al., 2024)

    Students with DLD sometimes lash out at others when they cannot express anxiety, upset, or the frustration of being misunderstood. One speech–language pathologist told researchers, “We tend to get a lot of young people who are presenting at school, with quite significant behavioural difficulties and we tend to find that being viewed as a behavioural child, rather than a child that’s got underlying language needs that have been un-diagnosed” (Hancock et al., 2023).  

     

    What Can We Do to Support Mental Health for People With DLD? 

    DLD is a lifelong condition, and language differences are likely to persist throughout secondary and higher education into adulthood. The most important step we can take is to conduct a thorough language evaluation to understand the specific strengths and needs of an individual, and then provide the language supports and training for each person.  

    Here are a few other suggestions for creating supportive classrooms and workspaces, gleaned from qualitative studies that explored DLD’s practical effects. 

     

    Give people more time to concentrate, answer, or respond.  

    For people with DLD, finding the right words, whether in speech or in writing, generally takes more time and effort than it does for neurotypical individuals. Some students worry that their teachers won’t trust them enough to provide that extra time. 

    Elsa explained, “[I]t takes more time for me sometimes to reply and think and such, and study. It takes more time for me.”  Fourteen-year-old Harry said his teacher questioned him about the last two tasks in an assignment Henry had not completed. “I just didn’t get that far, I just said. And it was like, ‘Well, what were you doing then?...What did you do in class then?’”  

    Sometimes, what looks like a challenging behavior is actually a student expressing a language need. For example, 18-year-old Rory habitually closed his textbook so he could devote his full attention to listening as his teacher read a passage aloud.  

    "I close the book; I listen much better," he explained. But Rory's teacher objected. She felt his behavior disturbed other students who were able to follow along in the text as she read. What looked like a student refusing to read was in reality a student doing his utmost to compensate for DLD (Ekström et al., 2023).  

     

    Think about safety when putting people in groups.

    For some students, speaking in a whole class situation is intimidating, but a small group is less trying. This is especially true if the members of the small group feel safe and are accepting of the person with DLD. 

    “It depends who I’m with,” one student said, “if I’m comfortable with the persons or not, if I, like, know them” (Ekström et al., 2023). 

    For some students, the group that feels safest is one where younger children are present. One parent noticed, “When [Abigail] was at preschool she always used to play with like the babies and the younger ones…I think because they were sort of at a language similar to her. She felt safe.” 

    Looking back on her childhood, Sammy told researchers, “My last year, I did form friendships with slightly younger children…being like a buddy for like a younger child…I could form so much better friendships with them...because I felt like I wasn’t going to be condescended to” (Burnley et al., 2024). 

     

    Notice and support areas of strength. 

    Everyone has areas of personal strength and talent. Because DLD affects self-concept, it’s important to notice and talk about what a person can do, rather than focusing exclusively on challenges. As you plan instruction, interventions, and accommodations, it’s a good idea to build on existing strengths and to incorporate interests.  

    Parents of children with DLD said their children had developed areas of strength because of their language difficulties. These included: 

    • heightened visual skills 
    • keen perception of the body language and mental states of others 
    • empathy for the feelings of others 
    • artistic or creative expression 
    • willingness to bounce back and keep trying (Burnley et al., 2023) 

    One adult with DLD said it this way:

    If I could tell the middle and high school teachers, the peers from those seven years, the family member who refused to accept my diagnosis, and my younger self anything, I would tell them that intelligence and DLD are not mutually exclusive. In fact, many of these children grow in their intelligence because of DLD and the need to find ways around their language difficulties (Orrego et al., 2023).

     

    Foster choice when it comes to language-intense experiences. 

    Long lectures, reading assignments, and writing projects are disproportionately difficult for those with DLD.  When possible, allow people to break such tasks into smaller segments or choose alternate ways to express their knowledge and opinions.  

    A group of 293 parents, teachers, and allied health professionals rated literacy and language tasks the most challenging school tasks for children with DLD (Ziegenfusz et al., 2025). The group also said additional time and visual supports were the most helpful accommodations.  

    Olga, 17, told researchers, “It’s fine…when I can decide on my own how much time I have to read…If a teacher tells me, ‘Read from page 50 to 60,’ then I can’t read that much, so I have to like split it up, and then process it afterwards, and then read the next” (Ekstrom et al., 2023). 

     

    Adapt the workplace to support those with DLD.  

    DLD does not disappear in adulthood. Awareness and support are as important at work as they are at school. One adult with DLD shared the need for ongoing acceptance and inclusion in the workplace: 

    Those of us with DLD might ask you to repeat something that we didn’t catch the first time. Or we might need a little extra time to formulate and articulate an idea in one-on-one conversations or in group meetings. We might ask you to present information in a format suited to our learning preferences (for instance, I am a hands-on, visual learner, and I do better with written communication). We don’t want you to interrupt or finish our sentences for us. And if we struggle to get the information out or aren’t meeting an unknown deadline that wasn’t explicitly stated, please don’t say “try harder”—you have no idea how hard we are already trying (Hirn, 2023).

     

    Know that you’re making a big difference.  

    For many people with DLD, receiving a clear diagnosis is a turning point. Participating in therapy can also be transformative.  

    One adult with DLD spoke of her speech–language pathologist, Stella, this way:

    Stella was a crucial player in my story. Although I was, according to her, one of her most severe cases, she never lost her enthusiasm or patience with me. She got to know me—a studious young girl who loved to read and tell stories—and tailored our sessions to my style of work and play…Stella provided a fun, safe, unconditionally accepting environment for me to try new tactics, make mistakes, and learn.

    –Paula (Orrego et al., 2023)

     

    Key Message  

    Studies that allow us to share the perspectives of people with DLD are valuable because the condition so often goes unrecognized in schools and workplaces. Learning about the lived experience of people with DLD may help educators and clinicians identify the condition, plan appropriate interventions, and adapt the environment to better meet each person’s language needs. 

     

     

    Research and Resources:

     

    Burnley, A., St Clair, M., Dack, C., Thompson, H., & Wren, Y. (2024). Exploring the Psychosocial Experiences of Individuals with Developmental Language Disorder During Childhood: A Qualitative Investigation. Journal of Autism and Developmental Disorders, 54(8), 3008–3027. https://doi.org/10.1007/s10803-023-05946-3 

    Ekström, A., Sandgren, O., Sahlén, B., & Samuelsson, C. (2023) ‘It depends on who I'm with’: How young people with developmental language disorder describe their experiences of language and communication in school. International Journal of Language & Communication Disorders, 58, 1168–1181. https://doi.org/10.1111/1460-6984.12850 

    Hancock, A., Northcott, S., Hobson, H., & Clarke, M. (2023). Speech, language and communication needs and mental health: The experiences of speech and language therapists and mental health professionals. International Journal of Language & Communication Disorders, 58(1), 52–66. https://doi.org/10.1111/1460-6984.12767 

    Hirn, J. (2023 September 5). From my perspective/opinion: what it’s like being an SLP with DLD. https://leader.pubs.asha.org/do/10.1044/leader.FMP.28092023.slp-dld-advocacy.8/full/ 

    Janssen, L., Scheper, A., & Vissers, C. (2024). Controlling the narrative: the relationship between narrative ability and executive functioning in children with developmental language disorder. Frontiers in Psychology, 15, 1489997. https://doi.org/10.3389/fpsyg.2024.1489997 

    Koyuncu, Z., Zabcı, N., Seçen Yazıcı, M., Sandıkçı, T., Çetin Kara, H., & Doğangün, B. (2024). Evaluating the association between developmental language disorder and depressive symptoms in preschool children. Applied Neuropsychology. Child, 1–10. Advance online publication. https://doi.org/10.1080/21622965.2024.2385659

    Nudel, R., Christensen, R. V., Kalnak, N., Schwinn, M., Banasik, K., Dinh, K. M., DBDS Genomic Consortium, Erikstrup, C., Pedersen, O. B., Burgdorf, K. S., Ullum, H., Ostrowski, S. R., Hansen, T. F., & Werge, T. (2023). Developmental language disorder: A comprehensive study of more than 46,000 individuals. Psychiatry Research, 323, 115171. https://doi.org/10.1016/j.psychres.2023.115171 

    Ormieres, C., Lesieur-Sebellin, M., Siquier-Pernet, K., Delplancq, G., Rio, M., Parisot, M., Nitschké, P., Rodriguez-Fontenla, C., Bodineau, A., Narcy, L., Schlumberger, E., Cantagrel, V., & Malan, V. (2025). Deciphering the genetic basis of developmental language disorder in children without intellectual disability, autism or apraxia of speech. Molecular Autism, 16(1), 10. https://doi.org/10.1186/s13229-025-00642-8 

    Orrego, P. M., McGregor, K. K., & Reyes, S. M. (2023). A first-person account of developmental language disorder. American Journal of Speech-Language Pathology, 32(4), 1383–1396. https://doi.org/10.1044/2023_AJSLP-22-00247 

    Sansavini, A., Favilla, M. E., Guasti, M. T., Marini, A., Millepiedi, S., Di Martino, M. V., Vecchi, S., Battajon, N., Bertolo, L., Capirci, O., Carretti, B., Colatei, M. P., Frioni, C., Marotta, L., Massa, S., Michelazzo, L., Pecini, C., Piazzalunga, S., Pieretti, M., Rinaldi, P., … Lorusso, M. L. (2021). Developmental language disorder: Early predictors, age for the diagnosis, and diagnostic tools. A scoping review. Brain Sciences, 11(5), 654. https://doi.org/10.3390/brainsci11050654 

    Wilmot, A., Boyes, M., Sievers, R., Leitão, S., & Norbury, C. (2024). Impact of developmental language disorders on mental health and well-being across the lifespan: A qualitative study including the perspectives of UK adults with DLD and Australian speech-language therapists. BMJ Open, 14(10), e087532. https://doi.org/10.1136/bmjopen-2024-087532 

    Ziegenfusz, S., Westerveld, M. F., Fluckiger, B., & Paynter, J. (2025). Stakeholder perspectives on educational needs and supports for students with developmental language disorder. International Journal of Language & Communication Disorders, 60(1), e13134. https://doi.org/10.1111/1460-6984.13134 

     

     

  • Is It DLD or Dyslexia?

     

    Developmental language disorder (DLD) and dyslexia are both lifelong conditions that affect academic performance—and virtually every other area of a person’s life. Learning to distinguish between the similar-looking effects of these two conditions can help you anticipate potential difficulties, individualize interventions, and identify which supports and accommodations will be most meaningful. 

     

    Diagnostic Definitions 

    DLD and dyslexia have gone by numerous other names over the years. The Diagnostic and Statistical Manual of Mental Disorders, 5th Edition Text Revision (DSM-5-TR) currently defines them like this. 

    What is Specific Learning Disorder with Impairment in Reading? (Dyslexia)

    What is language disorder? (DLD)

    This condition is evidenced by difficulties with word reading accuracy, reading rate or fluency, and reading comprehension. The DSM-5-TR notes that the term dyslexia refers to “a pattern of learning difficulties characterized by problems with accurate or fluent word recognition, poor decoding, and poor spelling abilities.”

    This condition is evidenced by “persistent difficulties in the acquisition and use of language across modalities,” including spoken, written, and sign language. People with language disorder have a reduced vocabulary, limited ability to build sentences, and impairment in the ability to use words and sentences to explain or describe things or to have a conversation.

     

    (American Psychiatric Association, 2022)

     

    Even among school-based practitioners who regularly work with students who have one or both conditions, considerable confusion exists when it comes to defining the terms (DeLuca et al., 2025). 

    An important note: In a 2023 letter addressed to the president of the American Speech-Language-Hearing Association (ASHA), the Office of Special Education programs noted that language impairments such as DLD can be addressed under the existing disability categories defined within the Individuals with Disabilities Education Act (IDEA) (Hogan et al., 2023). 

     

    Can You Have Dyslexia and DLD at the Same Time?

    Yes. Researchers say it’s not uncommon for people with DLD to have learning disorders such as dyslexia and dyscalculia (Nitin et al, 2022).  In fact, the National Institute on Deafness and Other Communication Disorders (NIDCD) considers DLD to be a risk factor for learning disabilities, making it around six times more likely that someone with DLD will be diagnosed with a reading or spelling disability by the time they reach their adult years (NIDCD, 2023). In one long-term study, male children who had been diagnosed with DLD and had a family member with a specific learning disorder had a 54% chance of having a specific learning disorder themselves (Rinaldi et al., 2023).  

     

    What Are the Similarities and Differences Between DLD and Dyslexia? 

    Dyslexia and DLD are both neurodevelopmental conditions, and they have some similarities. Both emerge in early childhood and continue as a person grows. Both conditions are linked to differences in brain structure and nerve networks—but different areas of the brain are involved in each condition. Similarly, while the two conditions have effects that can look alike, those effects may have different origins.

    Here’s a brief look at skills that may be affected by these neurodevelopmental conditions, along with tips for telling them apart

     

    Phonology

    Phonological awareness is the ability to identify and work with phonemes (the individual sounds that make up words). Skills such as rhyming, sound matching, and sound/symbol connection are typically included under the umbrella of phonological awareness.  

    Dyslexia and DLD can affect people’s phonological awareness, making it harder to break words into syllables, to blend letter sounds, and to distinguish letter sounds from each other. When people have both dyslexia and DLD, phonological awareness tasks may be even harder for them than they are for people with just one of the conditions (Snowling et al., 2019).  

    In one study, preschool children with DLD had particular difficulty adding syllables and identifying and adding phonemes (Moraleda-Sepúlveda & López-Resa, 2022). In another study, children with DLD had trouble with phoneme deletion tasks (Oliviera et al., 2020). 

      

    Assessment Tip

    Phonological awareness is a multidimensional skillset that is crucial for early literacy development. It can be measured in children beginning in preschool. The Phonological and Print Awareness Scale (PPA Scale™) is a quick, easy-to-use assessment that can help educators identify the specific phonological awareness skills that may need explicit instruction and intervention. It allows you to compare a student’s scores with typically developing peers and to monitor a child’s growth over time.

     

     

    Word Reading and RAN

    Word reading difficulties are a key feature of dyslexia, and they’re not uncommon in students with DLD. Rapid automatized naming (RAN), which is the ability to quickly recall and name colors, letters, numbers, and other symbols, is considered by some experts to be the basis of word reading skills (de Bree et al., 2022).  

    RAN is an area of difficulty for students with dyslexia. In fact, RAN is considered a “universal marker” for dyslexia (Carioti et al., 2022). Some students with DLD also have difficulties with RAN, but a 2020 study found that they had fewer errors in RAN tasks than study participants who had dyslexia. Instead, children with DLD made more errors in nonword repetition tasks (Oliviera et al., 2020).  

     

    Assessment Tip

    The Tests of Dyslexia (TOD®) assesses all the skill areas recommended by the International Dyslexia Association, including RAN, decoding efficiency, orthographic processing, and many other components of word reading and spelling. It allows you to screen for dyslexia risk, determine the probability of dyslexia, and plan interventions using a companion guide grounded in the Science of Reading.

     

     

    Morphology  

    Morphology is word-building: putting words together from smaller units of meaning. Children as young as 18 months can play with word forms to make new words, often starting with word features that indicate singular or plural numbers. From there, they might go on to learn word endings that change the meaning of a word, such as adding -er to indicate someone who does an action. Drive becomes driver, for example.  

    Morphology is important in the development of oral language, reading, and spelling. It’s a skillset that may be impaired in some people with dyslexia (Melloni & Vender, 2022).  It may be even more common in people with DLD. In fact, some experts consider morphological difficulties to be “clinical marker” of DLD.  

    In studies, verb tense, pronouns, and formation of the plural are often areas of concern in people with DLD. These error patterns may vary slightly from one language to another (Moraleda-Sepúlveda & López-Resa, 2022). In students with dyslexia, decoding complex words and “function” words may be a challenge. Researchers recommend assessing children’s “linguistic profile” in a dyslexia evaluation to find out whether an error pattern is related to morphology or phonology (Casani et al., 2022).  

    Researcher Evelyn Fisher and her team summarized the differences like this:

    Children with language impairment have difficulty in primarily nonphonological language skills of syntax and morphology, while children with dyslexia have impairments primarily in phonological processing. (Fisher et al., 2019)

      

    Assessment Tip

    Knowledge of grammatical morphemes is one of the skill areas measured by the Comprehensive Assessment of Spoken Language, Second Edition (CASL®-2). The CASL-2 yields an in-depth picture of 14 spoken language skills. It can help identify language delays and disorders and determine eligibility for speech services or placement in special education, in addition to measuring language abilities in English learners who demonstrate proficiency in English.

     

     

    Syntax  

    Syntax is sentence-building: putting words in order so they convey the meaning you intend. It’s an area of difficulty in DLD, but people with dyslexia sometimes also have some trouble with syntax. In a 2024 study, students with dyslexia showed less syntactic awareness than typically developing students, and researchers suggested that “phonological awareness problems in particular might be responsible for syntactic awareness difficulties in dyslexia” (Robertson et al., 2024).  

    In students with DLD, syntactic difficulties make it harder to: 

    • put words in the right order when speaking or writing 
    • follow complex sets of instructions 
    • understand embedded clauses and phrases in sentences 
    • tell stories in an organized way (NIDCD, 2023) 

    Assessment Tip

    The Oral and Written Language Scales, Second Edition (OWLS®-II) evaluates language processing in four areas: listening comprehension, oral expression, reading comprehension, and written expression. It provides a detailed, integrated view of a student’s capabilities—including understanding of text organization, cohesion, and conventions.

     

     

    Comprehension

    Both dyslexia and DLD can interfere with a child’s ability to understand what a text means. For younger students with dyslexia, decoding difficulties are often the root of comprehension problems. Focusing intently on sounding out each word places a big demand on cognitive resources, which may tax other comprehension-related abilities like working memory and inferencing skills.  

    Some students develop compensatory skills that allow them to understand texts even if decoding remains a challenge. In a study that looked at reading comprehension in university students, researchers found that students with dyslexia activated their general vocabularies and background knowledge to fill in gaps as they read. That allowed them to understand higher level texts despite their word reading skills (Brèthes et al., 2022). 

    Students with DLD also use compensation strategies to grasp the meaning of texts—even if they don’t have trouble with word-reading. One such method is called the keyword strategy. A reader identifies certain key words and infers the meaning of the text without processing other “functional” words such as prepositions and conjunctions. Because functional words can change meaning, students who use the keyword strategy may misunderstand texts.  

    Comprehension difficulties may not be related to word reading skills in students with DLD; instead, they often stem from oral language deficits (Snowling et al., 2020). For that reason, researchers recommend assessing listening comprehension in students with low literacy skills. Listening comprehension, like reading comprehension, involves several sub-processes and skills that ladder up to understanding—and knowing where a student’s challenges lie can help you tailor instruction and intervention (Bar-Kochva et al., 2023).

      

    Assessment Tip

    The Oral Passage Understanding Scale (OPUS™) measures listening comprehension, including skills that contribute to reading and learning, such as inference, prediction, and memory skills. The OPUS sheds light on oral language abilities that may be interfering with comprehension.

     

      

    Narratives

    Narrative tasks check if students understand or can create stories. When educators and clinicians look at narrative skills, they’re often asking whether a story is cohesive, whether a student understands story elements, and whether a student has sufficient language skills to tell or recall a story.  

    Students with dyslexia sometimes have difficulty with narrative tasks, but students with DLD may be more likely to have trouble in this area. That’s because broader language skills like syntax and morphology are tapped in narrative tasks.  

    Some researchers think narrative difficulties may also have to do with executive function issues. Executive function is a group of cognitive skills that enable us to plan, organize, and follow through on goal-oriented behaviors. They play an important role in reading and communicating, because they allow us to hold important information in memory as we speak, write, read, and learn. They help us resist distraction and focus our attention. All these skills are needed to understand and create cohesive narratives (Fisher et al., 2019). 

      

    Assessment Tip

    The Oral and Written Language Scales, Second Edition (OWLS®-II),  Comprehensive Assessment of Spoken Language, Second Edition (CASL®-2), and Oral Passage Understanding Scale (OPUS™) are important tools for evaluating your students’ narrative capabilities. To assess a student’s executive function, consider the Behavior Rating Inventory of Executive Function, Second Edition (BRIEF-2), an easy-to-administer measure that provides a clear picture of executive function skills in children and teens. 

     

    Which View of Reading Fits DLD Better?

    The simple view of reading (Gough & Tunmer, 1986) says that people learn to read when they combine two sets of skills: decoding and language comprehension. More recently, researchers have proposed an alternate “formula” for reading.  

    The active view of reading (Duke & Cartwright, 2021) describes several other abilities that must also be present for a student to learn to read. These skills act as a bridge between decoding abilities and language comprehension—enabling students to understand what they read. These bridging skills include reading fluency, morphological awareness, vocabulary, and self-regulation skills such as executive function, motivation, and the use of intentional reading strategies (Duke & Cartwright, 2021).  

    Experts say the active view of reading “offers a more comprehensive, holistic view of reading comprehension and can therefore help researchers and practitioners better identify, diagnose, and plan reading intervention for children with DLD” (Lam et al., 2024).

     

     

    What Are Best Practices for Assessing DLD and Dyslexia? 

    1. Assess broadly. Evaluating early literacy skills, reading skills, and language skills can help you create a detailed language profile for the person involved. Comprehensive assessment can help you determine whether needs are related to reading and literacy or whether they extend to other expressive or receptive language skills.
    2. Assess early. Because DLD and dyslexia are both neurodevelopmental conditions, indicators may be present long before a child enters school. Earlier identification and intervention may prevent some educational, social, and mental health effects.
    3. Gather data from multiple sources. Include detailed family and developmental histories when possible. If a student is learning multiple languages, take special care to explore that child’s language history, so you can determine whether any difference is related to language learning. Other risk factors for DLD include delayed gesture production, limited receptive and/or expressive vocabulary size, and a lack of two-word combinations at 30 months (Sansavini et al., 2021). 
     

     

    Key Message

    DLD and dyslexia share many characteristics, and some children experience both conditions at the same time. Careful, comprehensive evaluation can make diagnostic decisions clearer and can lead to more effective instruction and intervention.  

     

     

    Research and Resources:

     

    American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.). https://doi.org/10.1176/appi.books.9780890425787 

    Bar-Kochva, I., Vágvölgyi, R., Schrader, J., & Nuerk, H. C. (2023). Oral language comprehension of young adults with low-level reading comprehension. Frontiers in Psychology, 14, 1176244. https://doi.org/10.3389/fpsyg.2023.1176244 

    Brèthes, H., Cavalli, E., Denis-Noël, A., Melmi, J. B., El Ahmadi, A., Bianco, M., & Colé, P. (2022). Text reading fluency and text reading comprehension do not rely on the same abilities in university students with and without dyslexia. Frontiers in Psychology, 13, 866543. https://doi.org/10.3389/fpsyg.2022.866543 

    Carioti, D., Stucchi, N., Toneatto, C., Masia, M. F., Broccoli, M., Carbonari, S., Travellini, S., Del Monte, M., Riccioni, R., Marcelli, A., Vernice, M., Guasti, M. T., & Berlingeri, M. (2022). Rapid automatized naming as a universal marker of developmental dyslexia in Italian monolingual and minority-language children. Frontiers in Psychology, 13, 783775. https://doi.org/10.3389/fpsyg.2022.783775 

    Casani, E., Vulchanova, M., & Cardinaletti, A. (2022). Morphosyntactic skills influence the written decoding accuracy of Italian children with and without developmental dyslexia. Frontiers in Psychology, 13, 841638. https://doi.org/10.3389/fpsyg.2022.841638 

    deBree, E. H., Boerma, T., Hakvoort, B., Blom, E. & van den Boer, M. (2022). Word reading in monolingual and bilingual children with developmental language disorder. Learning and Individual Differences, 98(102185).  

    De Las Heras, G., Simón, T., Domínguez, A. B., & González, V. (2022). Reading strategies for children with developmental language disorder. Children, 9(11), 1694. https://doi.org/10.3390/children9111694 

    DeLuca, T., Radville, K. M., Pfeiffer, D. L., & Hogan, T. (2025). Defining developmental language disorder and dyslexia in schools: A mixed-methods analysis. Journal of Speech, Language, and Hearing Research, 68(2), 618–635. https://doi.org/10.1044/2024_JSLHR-24-00202 

    Duke, N.K., & Cartwright, K.B. (2021). The science of reading progresses: Communicating advances beyond the simple view of reading. Read Research Quarterly, 56(S1), S25–S44. https://doi.org/10.1002/rrq.411 

    Fisher, E. L., Barton-Hulsey, A., Walters, C., Sevcik, R. A., & Morris, R. (2019). Executive functioning and narrative language in children with dyslexia. American Journal of Speech-Language Pathology, 28(3), 1127–1138. https://doi.org/10.1044/2019_AJSLP-18-0106 

    Gough, P. B., & Tunmer, W. E. (1986). Decoding, reading, and reading disability. Remedial & Special Education, 7(1), 6–10. https://doi.org/10.1177/074193258600700104 

    Hogan, T., Farquharson, K. & McGregor, K. (2023 September 5). New IDEA guidance includes developmental language disorder as a qualifying category. https://leader.pubs.asha.org/do/10.1044/2023-0911-slp-dld-advocacy/full/ 

    Lam, J. H. Y., Leachman, M. A. & Pratt, A. S. (2024). A systematic review of factors that impact reading comprehension in children with developmental language disorders. Research in Developmental Disabilities, 149(104731). https://doi.org/10.1016/j.ridd.2024.104731 

    Melloni, C., & Vender, M. (2022). Morphological awareness in developmental dyslexia: Playing with nonwords in a morphologically rich language. PloS One, 17(11), e0276643. https://doi.org/10.1371/journal.pone.0276643 

    Moraleda-Sepúlveda, E., & López-Resa, P. (2022). Morphological difficulties in people with developmental language disorder. Children, 9(2), 125. https://doi.org/10.3390/children9020125 

    National Institute on Deafness and Other Communication Disorders. (2023, May 8). Developmental language disorder. https://www.nidcd.nih.gov/health/developmental-language-disorder 

    Nitin, R., Shaw, D. M., Rocha, D. B., Walters, C. E., Jr, Chabris, C. F., Camarata, S. M., Gordon, R. L., & Below, J. E. (2022). Association of developmental language disorder with comorbid developmental conditions using algorithmic phenotyping. JAMA Network Open, 5(12), e2248060. https://doi.org/10.1001/jamanetworkopen.2022.48060 

    Oliveira, C. M., Vale, A. P., & Thomson, J. M. (2021). The relationship between developmental language disorder and dyslexia in European Portuguese school-aged children. Journal of Clinical and Experimental Neuropsychology, 43(1), 46–65. https://doi.org/10.1080/13803395.2020.1870101 

    Rinaldi, P., Bello, A., Simonelli, I., & Caselli, M. C. (2023). Is specific learning disorder predicted by developmental language disorder? Evidence from a follow-up study on Italian children. Brain Sciences, 13(4), 701. https://doi.org/10.3390/brainsci13040701 

    Robertson, E. K., Mimeau, C. & Deacon, S. H. (2024). Do children with developmental dyslexia have syntactic awareness problems once phonological processing and memory are controlled? Language Science, 3(2024). https://doi.org/10.3389/flang.2024.1388964 

    Sansavini, A., Favilla, M. E., Guasti, M. T., Marini, A., Millepiedi, S., Di Martino, M. V., Vecchi, S., Battajon, N., Bertolo, L., Capirci, O., Carretti, B., Colatei, M. P., Frioni, C., Marotta, L., Massa, S., Michelazzo, L., Pecini, C., Piazzalunga, S., Pieretti, M., Rinaldi, P., … Lorusso, M. L. (2021). Developmental language disorder: Early predictors, age for the diagnosis, and diagnostic tools. A scoping review. Brain Sciences, 11(5), 654. https://doi.org/10.3390/brainsci11050654 

    Snowling, M. J., Hayiou-Thomas, M. E., Nash, H. M., & Hulme, C. (2020). Dyslexia and developmental language disorder: Comorbid disorders with distinct effects on reading comprehension. Journal of Child Psychology and Psychiatry and Allied Disciplines, 61(6), 672–680. https://doi.org/10.1111/jcpp.13140 

     

     

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    *Originally posted on 4/7/23 and updated on 5/16/25

     

    An autism evaluation is a rich and fluid interaction, shaped by so much more than test scores. Even within a formal autism assessment, there are many opportunities to share authentic connection. One of the most valuable is the chance to listen to the lived experiences of autistic girls and women.

    Why Listening Matters 

    Perhaps the most important reason to listen to the authentic experience of autistic girls and women is that it’s necessary for their well-being. For many people, masking continues even in healthcare spaces, because so many autistic girls and women feel they have not been “heard, believed, or understood” in the very places where they seek help and care. The result is that many people have trouble trusting, feeling hope, and thinking of themselves as worthy (Yau, et al., 2023).  

    Should I Say ‘Person With Autism’ or ‘Autistic Person’? 

    Language plays an important part in respecting a person’s identity. Many adults prefer the term ‘autistic person’ because they see autistic qualities as part of their personality. Others prefer ‘person with autism’ to emphasize themselves first–but that phrase might insinuate that autism might go away. As with all the other reasons to highlight the lived experiences of autistic girls and women, it’s best to ask the person what they prefer, or if they have a preference at all  

     

    How Do Autistic Girls Present Differently Than Autistic Boys? 

    Learning about girls’ experiences broadens the established view of autism—a view largely based on research that involved many more boys than girls. Listening to the ways girls and women experience autism does not change the diagnostic criteria, but it can reveal more about how core characteristics are expressed differently across sexes and genders.  

    In that way, listening can help shrink the diagnostic gap. And it can help to repair people’s trust in systems that have not always been responsive to their needs. 

      

    3 Tips for Making Two-Way Communication Easier 

    1. Reduce anxiety by providing information in advance, including visual aids, written descriptions, and maps.
    2. Avoid rapid-fire questions.
    3. Speak in concrete, literal terms, avoiding figurative language (Radev et al., 2024). 

     

    How Do Autistic Females Describe Themselves? 

    A growing number of researchers are publishing studies that center the voices of autistic girls and women. In a 2024 meta-analysis of earlier studies that explored well-being in autistic teens and women, researchers identified three themes: autistic biological and social experiences, living in a neurotypical world, and experiencing stigma around autism (O’Connor et al., 2024). 

    That is the downside of [masking].” 

    Autistic girls and women said they often downplay, hide, or disguise their autistic traits to make it easier to adapt to the expectations of others. While some described camouflaging or masking as “an essential tool,” its long-term impact on their emotional health was seen as negative. Women said masking left them feeling: 

    • exhausted,
    • embarrassed,
    • anxious,
    • unhappy, and
    • drained (O’Connor et al., 2024). 

    One study participant said, “That is the downside of [masking]. Having no true friends or having less true friendsyou’re basically changing who you are” (Bernardin et al., 2021).  

    Researchers pointed out that masking may not be a conscious choice, but may be influenced by “unconscious” factors, especially in a culture where authentic self-expression could lead to social stigma, discrimination, or bullying. They described masking as “an unsurprising response to the deficit narrative and accompanying stigma that has developed around autism (Pearson & Rose, 2021).  

    “It’s very important to have autistic space for people.” 

    For some autistic girls and women, an autism diagnosis created an opportunity to build connections with others in the autism community. Those connections often led to greater self-acceptance and self-compassion 

    “It’s very important to have autistic space for people,” one participant noted. “Sometimes people fear this is a form of self-silo-ing or segregation, and I’m not trying to say we don’t need to survive in the non-autistic world, too…but it’s such a lifeline for many of us (Crompton et al., 2020).  

    Another autistic woman explained, “With autistic people who speak my language…it goes fantastically well most of the time (Livingston et al., 2019).  

    “I wanted to join in, but I wasn’t sure how.” 

    In a study published in 2019, a small group of autistic girls and their mothers shared their perspectives and described their experiences. Researchers found several consistent themes. 

    Many of the girls in this study felt a persistent sense that they did not feel they “fit in” with the world around them. One participant said it this way: “It kind of feels like you’re an outsider looking in and like there’s this world that you’re just kind of observing from the outside and when you have to get directly involved in it, it can be a bit hard sometimes (Milner et al., 2019). 

    The feeling of being an outsider was particularly strong around friendship. Many of the girls in this study said they wanted friends and social connection but were unsure how to go about it. Some had trouble making friends. Others were adept at making friends but had trouble maintaining friendships over long periods 

    In a similar 2017 study, one autistic woman described her childhood social relationships as having “an invisible glass barrier between me and them.” The sense of isolation was so severe, she recalls having had suicidal thoughts as early as 7 years old (Kanfiszer et al., 2017).  

    “That’s the trouble with female ASD.…” 

    For many autistic girls and women, sex, gender, and autism intersect to create obstacles that may not exist for autistic boys and men (Milner et al., 2019). For example, gender norms and expectations posed a particular challenge to the girls and women in this study. Some said society expects girls to “gather round and talk and/or watch things and chat and gossip.” That need to conform to social communication norms caused extra stress and, in some cases, a sense of estrangement.  

    For some, stereotypically female gender presentation was its own challenge. “I’m no good at being a girl,” one participant said. 

    Others said they felt autistic boys and men might feel less pressure to mask or camouflage. One woman said, “What I get down about is feeling like I should have to interact, and they’re more happy to say, like, ‘No, I wanna do my own thing’” (Milner et al., 2019). 

    For some women, meeting societal expectations left them feeling taken advantage of, especially in their professional lives. One woman said, “I’ve been taken advantage of a lot . . . in a lot of situations, if somebody asks you for help your first instinct as a female is to say, sure yes, what do you need? And a lot of times . . . saying yes to some things is not the right thing to do” (Grove et al., 2023). 

    “It’s the most difficult thing in the world.…” 

    Several girls and women explained that co-occurring conditions like anxiety, depression, and sensory overload were far more distressing than autism. One participant noted that “the anxiety that stems from it, more than anything else” kept her from taking advantage of opportunities (Milner et al., 2019). 

    Some girls said the most difficult aspects of autism were 

    • memory problems;
    • meltdowns;
    • shutdowns;
    • navigating relationships and sexuality;
    • feeling different; and
    • being vulnerable to predatory attentions.  

    Predators often target autistic women. One study conducted in France reported that between 68% and 88% of autistic women had been sexually assaulted (Cazalis et al., 2022). 

     

    For some people, being mistakenly diagnosed with another condition (such as bipolar disorder) delayed an autism diagnosis. One blogger wrote, “I felt tied to the diagnosis I had and even though my heart knew it wasn’t right, my rigid thinking made me cling to it for far too long” (Harmens et al., 2022). 

     

     

    “It feels difficult, like other people don’t really understand your needs.” 

    According to Milner et al., autistic girls and their mothers said too few people understood the nature of autism in girls and women. For many, the lack of understanding left them feeling isolated. For some, the perceptions of outsiders added stress on the family.  

    I think it would be nice,” said one participant, “for people to realize that autism can affect girls  (Milner et al., 2019). 

    “I just do my best to keep functioning.” 

    In a 2023 study involving interviews with 31 autistic girls and women, two additional themes were highlighted: difficulty managing daily tasks and developing a positive autistic identity.  

    For girls and women in this study, the practical demands of managing a household, family, and personal finances could sometimes feel overwhelming. For some people, the sense of “overwhelm” was related to everyday social demands. For others, sensory differences and executive functioning added stress 

    One participant explained, “I definitely get overwhelmed quite easily and I struggle to manage the different parts of my life . . . I get quite focused on certain things, such as my work, and then don’t know where to fit in things like going grocery shopping and cleaning my house.  Another individual said, I theoretically know all the stuff I need to help organize and plan myself. But you can be so dysregulated that you can’t do any of itall that executive function just goes really offline when your sensory system’s out” (Grove et al., 2023). 

    For some of the girls and women in this study, daily functioning was complicated by puberty and menopause, which presented sensory and emotional challenges. Many said they hadn’t felt supported by their healthcare providers through these periods of change. 

    “A good life on their own terms” 

    One of the major themes expressed by those in the Grove study was a desire to live authentically and be accepted as they are. For some, an autism diagnosis was the beginning of self-acceptance. Said one participant, “…Being diagnosed as autistic was then just getting to this level of understanding and shedding all the layers and being myself and being able to be happy” (Grove et al., 2023).  

    Another said, “I think that learning about autism at the age 41, 42 was possibly the biggest gift I could give to myself. Because I completely changed my lifestyle. The more information I received about what being autistic was for me, the more accommodations I could offer myself” (Grove et al., 2023). 

    Accepting autism as part of their identity allowed many women to find a sense of empowerment and community with other autistic people. One individual said, “I love working with and hanging out with other autistic or neurodiverse individuals. The connection and communication feels much more effortless and more natural than it does with non-autistic or non-neurodiverse individuals” (Grove et al., 2023).  

    “I am a unique part of the world.” 

    Despite the challenges of living in a neurotypical environment, many girls and women appreciated their differences. Among the benefits of autism cited in the Milner study were: 

    • a strong sense of justice
    • a well-developed moral compass
    • an outstanding memory
    • a unique perspective on the world
    • the ability to pay attention for long periods
    • greater creativity 

    Blogs as Windows Into Lived Experience 

    Several researchers have explored the experiential data in public-facing blogs authored by autistic women. In a 2022 study, a team of researchers identified three themes running through several such blogs: self-acceptance, acceptance by others, and exhaustion (Harmens et al., 2022)  

    Being an undiagnosed autistic can feel like the whole world is gaslighting you. 

    For many bloggers, autism diagnosis was a powerful experience. Characteristics and habits they hadn’t previously understood suddenly made sense. Many were able to seek support and accept themselves. 

    “The relief and empowerment I felt when I was diagnosed…were overwhelming” (Harmens et al., 2022). 

    That’s not to say every response to autism identification was positive. Some bloggers expressed regret that autism hadn’t been identified sooner One blogger reflected on the lack of understanding in her childhood, before her autism was identified: “You’re being told every day that your lived experience isn’t real. There have certainly been times that I have doubted my sanity” (Harmens et al., 2022).  

    “I feel like I’m being kicked out of my own disability. 

    After diagnosis, some bloggers found acceptance and solidarity with other autistic people. But others said their relatives doubted the diagnosis, leaving them with the feeling that they were imposters 

    “When I finally told the people around me about my diagnosis, the range of responses ran from skepticism to ‘Oh, I suspected it years ago.’Part of me is still sure that one day someone will point at me and say ‘faker!’” (Harmens et al., 2022). 

    Stereotypes about autism frequently fed into the sense that someone was not autistic enough. One blogger wrote, “I feel like they’re saying I’m fundamentally different from a LOT of other people with autism, the REALLY REAL PEOPLE WITH AUTISM, probably” (Harmens et al., 2022). 

    Another said, “I’ve spent my life never quite fitting in with the world around me. Late diagnosed autistic women like me float around the fringes of social circles…I am too weird to be normal but not autistic enough to be autistic?” (Petty et al., 2023). 

    “My chameleon skills were a double-edged sword.” 

    One pervasive feeling among bloggers was that of feeling depleted. Often, the need to camouflage autistic traits was the cause. “I could appear fairly ‘normal’ for stretches of time,” one blogger observed, but her “chameleon skills” then left her “drained…completely” (Harmens, et al., 2022). 

    Similar feelings were expressed in other studies, too. Speaking of the effort involved in camouflaging, one study participant said, “It’s kind of like a duck on water, you know. It’s calm on the surface but sort of paddling really hard underneath” (Milner et al., 2019).  

    People also said they were exhausted by fear of the diagnostic process and by the need to explain themselves to other people repeatedly. The latter was especially strong for those who didn’t match the stereotypes of autism. 

     

    Key Messages   

    Listening to the lived experiences of autistic girls and women can lead to a fuller, more nuanced understanding of autism. It can help to dismantle stereotypes and facilitate more accurate, timely diagnoses. And valuing the voices of autistic girls and women can foster a sense of belonging and acceptance that is vital to good mental health and supportive relationships. 

    WPS Assessment Consultants are available to help you plan comprehensive autism evaluations that include trusted assessments and intervention resources. 

     

      

    AUTISM RESOURCES  

    Further Reading on Autism 

    Videos and Webinars on Autism 

     

     

    Research and Resources:

     

    Bernardin, C. J., Lewis, T., Bell, D., & Kanne, S. (2021). Associations between social camouflaging and internalizing symptoms in autistic and non-autistic adolescents. Autism, 25(6), 1580–1591. https://doi.org/10.1177/1362361321997284 

    Cazalis, F., Reyes, E., Leduc, S., & Gourion, D. (2022). Evidence that nine autistic women out of ten have been victims of sexual violence. Frontiers in Behavioral Neuroscience, 16, 852203. https://doi.org/10.3389/fnbeh.2022.852203

    Crompton, C. J., Ropar, D., Evans-Williams, C. V., Flynn, E. G., & Fletcher-Watson, S. (2020). Autistic peer-to-peer information transfer is highly effective. Autism, 24(7), 1704–1712. https://doi.org/10.1177/1362361320919286

    Grove, R., Clapham, H., Moodie, T., Gurrin, S., & Hall, G. (2023). 'Living in a world that's not about us': The impact of everyday life on the health and wellbeing of autistic women and gender diverse people. Women's Health (London, England), 19, 17455057231189542. https://doi.org/10.1177/17455057231189542

    Harmens, M., Sedgewick, F., & Hobson, H. (2022). The quest for acceptance: A blog-based study of autistic women's experiences and well-being during autism identification and diagnosis. Autism in Adulthood: Challenges and Management, 4(1), 42–51. https://doi.org/10.1089/aut.2021.0016

    Kanfiszer, L., Davies, F., and Collins, S. (2017). “I was just so different”: The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships. National Autistic Society, 21(6). https://doi.org/10.1177/13623613166879

    Livingston, L. A., Shah, P., & Happé, F. (2019). Compensatory strategies below the behavioral surface in autism: A qualitative study. The Lancet. Psychiatry, 6(9), 766–777. https://doi.org/10.1016/S2215-0366(19)30224-X

    Milner, V., McIntosh, H., Colvert, E., & Happé, F. (2019). A qualitative exploration of the female experience of autism spectrum disorder (ASD). Journal of Autism and Developmental Disorders, 49(6), 2389–2402. https://doi.org/10.1007/s10803-019-03906-4

    O’Connor, R. A., Doherty, M., Ryan-Enright, T., & Gaynor, K. (2024). Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience. Autism, 28(4), 816-830. https://doi.org/10.1177/13623613231215026

    Pearson, A., & Rose, K. (2021). A conceptual analysis of autistic masking: Understanding the narrative of stigma and the illusion of choice. Autism in Adulthood: Challenges and Management, 3(1), 52–60. https://doi.org/10.1089/aut.2020.0043

    Petty, S., Allen, S., Pickup, H., & Woodier, B. (2023). A blog-based study of autistic adults' experiences of aloneness and connection and the interplay with well-being: Corpus-based and thematic analyses. Autism in Adulthood: Challenges and Management, 5(4), 437–449. https://doi.org/10.1089/aut.2022.0073

    Radev, S., Freeth, M., & Thompson, A. R. (2024). How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography. Autism, 28(9), 2166–2178. https://doi.org/10.1177/13623613241235531

    Yau, N., Anderson, S. & Smith, I. C. (2023). How is psychological wellbeing experienced by autistic women? Challenges and protective factors: A meta-synthesis. Research in Autism Spectrum Disorders, 102(102101). https://doi.org/10.1016/j.rasd.2022.102101 

     

     

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    Autism involves many potential differences in speech and language. For example, social communication differences are a core autism characteristic. Another core trait—repetitive behaviors—can include repetitive speech patterns such as echolalia. In some instances, autism affects another speech characteristic called prosody—the small ways we vary our tone, rhythm, and emphasis to add meaning to our speech. And of course, some autistic individuals use very few or no spoken words to communicate. For these reasons, most validated autism assessments contain measures of speech and language that enable practitioners to find out how autism is shaping the way a person communicates and interacts.  

    Depending on the individual in your care, it may be a good idea to widen the autism evaluation to include more specialized speech and language assessments. 

    Here’s an overview and introduction of unique communication strategies in autistic and neurodiverse individuals 

     

    What Is Alexithymia? 

    Alexithymia is a difficulty in recognizing and describing emotional states. It’s more common among autistic individuals than it is in the general population. Research suggests that between 45% and 60% of autistic individuals experience alexithymia, compared to roughly 10% in the general population (Oakely et al., 2022). Alexithymia has also been linked to sensory sensitivities, which often occur alongside autism (Yorke et al., 2025).  

    Alexithymia affects social communication, not only because a person may have trouble expressing their own emotional states and needs, but because it’s harder to “read” the emotion in words, expressions, and body language of other people. In one long-term study conducted as part of the EU-AIMS Longitudinal European Autism Project (LEAP), autistic people with alexithymia said their difficulty in recognizing emotion disrupted their everyday social functioning (Oakely et al., 2022).  

    Alexithymia has also been linked to anxiety and depression (Mason & Happé, 2022). Because this skillset affects so many areas of daily life, understanding it may help you to better support relationships, mental health, and quality of life.  

     

    What Is Echolalia?

    Echolalia is repeated or imitated speech. Someone may repeat words or phrases they’ve just heard in conversation or heard at an earlier time from some other source, possibly in media. Sometimes echolalia contains gestalts, or groups of words that stand in for a single concept. A child might call a jacket a “coat on nice and warm,” for example. Once, echolalia was a verbal behavior practitioners and families sought to change or erase. Increasingly, echolalia is seen as “a bridge to meaningful, self-generated speech with communicative intent” (Davis, 2017).

     

    What Is Hyperlexia? 

    For many autistic individuals, written language is an area of strength or focused interest. For example, hyperlexia—the ability to read at levels well beyond what is typical for one’s age—is more common among autistic individuals than in the general population. Researchers think between 6% and 20% of autistic individuals have advanced reading skills. One important note: hyperlexia doesn’t necessarily lead to a larger vocabulary or better reading comprehension (Ostrolenk et al., 2024).   

    Assessing speech and language can help you discover more about these strengths so you can use them to set goals and plan interventions, as well to validate and celebrate them.   

    Read about focused interests: Autism in Women and Girls: A Look at Special Interests

     

    Structural Language and Autism

    Difficulties with structural language are not considered a core autism trait. Even so, some experts say that around half of autistic individuals have impairments in this skillset (Georgiou & Spanoudis, 2021). Structural language includes grammar, vocabulary, morphology (how words are built), and syntax (how sentences are built).

     

    What Is Inferencing?  

    Inferencing is reaching a reasoned conclusion or opinion using information that isn’t explicitly stated. It’s sometimes described as reading between the lines. When people infer, they rely on nonverbal cues, figurative language, social norms, background knowledge, and other contextual information to grasp what people intend but may not be saying out loud. 

    Inferencing can be a challenge for some autistic people. Recalling and categorizing facts may be easy, but it could be harder to comprehend: 

    • causes and effects;
    • motives, goals, and emotional states of characters; and
    • predictions based on background knowledge (Westerveld et al., 2021). 

    Inferencing abilities can also affect people in conversation. Researchers say autistic people prefer literal language, so idioms and figurative language may be harder to understand (Martelle & Namazi, 2022).  

    And then there’s social inferencing: detecting the unspoken feelings and intentions of other people, which can be a real challenge (Loukusa et al., 2023). This skill is important in building and sustaining relationships. It also keeps people safe from exploitation. Research shows that autistic people often feel vulnerable to manipulation and deception because of their social communication differences. In one small study, for example, a group of autistic young adults watched videos and then decided whether the speaker was lying or telling the truth. The study participants briefly explained their reasoning. Those who said there were observable details, like a hesitation, to indicate a lie were more accurate than those who relied on nonverbal cues and other subjective impressions (Coburn et al., 2024). 

    Language, reading, and some autism assessments can provide reliable information about inferencing skills so you can plan appropriate supports 

     

    Pragmatics and Social Communication

    When practitioners assess social communication in an autism evaluation, one area of focus is pragmatics—the language we use to communicate in social contexts. Such assessments generally measure skills like these: 

    • understanding and using social cues 
    • comprehending sarcasm, figurative language, and implied meanings 
    • expressing and perceiving a full range of emotions 
    • adapting communication to context and purpose 
    • changing voice tone, facial expressions, and other non-verbal cues to communicate different feelings and intentions
    • starting and maintaining discussions, including asking for things and following conversational norms 

     

    How Do Non-Speaking Individuals Communicate?  

    Language assessment sheds light on specific support needs. Roughly 30% of autistic individuals use very few or no spoken words—yet they may be able to communicate using gestures, sign language, visual aids, or assistive and augmentative communication (AAC) devices (Schaeffer et al., 2023).   

    It’s important to note that expressive language and receptive language abilities can differ from one another; that is, a person may understand more language than they can verbalize. Furthermore, researchers emphasize that “language can be impaired or even absent in some children on the autism spectrum with otherwise intact intellectual abilities” (Schaeffer et al., 2023)  

     

     

    What Other Speech Differences Might Occur With Autism? 

    Autism can co-occur with other conditions that affect speech and language. It may overlap with or occur alongside these conditions: 

    • Developmental language disorder (DLD)
    • Speech sound or fluency disorders
    • Auditory processing disorders (APD)
    • Childhood apraxia of speech 

    A thorough speech and language evaluation can help you distinguish between conditions, identify the accommodations that best suit each person, and train that person’s communication partners.  

     

     

    Key Messages   

    All people, including autistic people, communicate in highly individual ways. While autism assessments are designed to identify speech and language patterns that are characteristic of autism, other speech and language differences might need more specialized assessments.  

    Speech and language disorders, hyperlexia, alexithymia, inferencing difficulties, and other variations affect the way people function in many important areas of their lives. The more we understand about each individual’s speech and language capabilities, the better we will be at co-creating an accepting, supportive path forward. 

     

     

    Research and Resources:

     

    Coburn, K. L., Miller, G. N.; Martin, L. A. & Kana, R. K. (2024). A mixed-methods analysis of deception detection by neurodiverse young adults. Topics in Language Disorders, 44(1), 63-79. https://doi.org/10.1097/TLD.0000000000000329 

    Georgiou, N., & Spanoudis, G. (2021). Developmental language disorder and autism: Commonalities and differences on language. Brain Sciences, 11(5), 589. https://doi.org/10.3390/brainsci11050589 

    Grace, K. G. (2017). Echoes of language development: 7 facts about echolalia for SLPs. https://leader.pubs.asha.org/do/10.1044/echoes-of-language-development-7-facts-about-echolalia-for-slps/full/ 

    Loukusa, S., Gabbatore, I., Kotila, A. R., Dindar, K., Mäkinen, L., Leinonen, E., Mämmelä, L., Bosco, F. M., Jussila, K., Ebeling, H., Hurtig, T. M., & Mattila, M. L. (2023). Non-linguistic comprehension, social inference and empathizing skills in autistic young adults, young adults with autistic traits and control young adults: Group differences and interrelatedness of skills. International Journal of Language & Communication Disorders, 58(4), 1133–1147. https://doi.org/10.1111/1460-6984.12848 

    Martelle, S. N., & Namazi, M. (2022). Feeling Thrown for a Loop? The Effects of Inferencing on Spoken Language Idiom Comprehension in Autism. Language, Speech, and Hearing Services in Schools, 53(2), 584–597. https://doi.org/10.1044/2021_LSHSS-21-00100 

    Mason, D., & Happé, F. (2022). The role of alexithymia and autistic traits in predicting quality of life in an online sample. Research in Autism Spectrum Disorders, 90, None. https://doi.org/10.1016/j.rasd.2021.101887 

    Oakley, B. F. M., Jones, E. J. H., Crawley, D., Charman, T., Buitelaar, J., Tillmann, J., Murphy, D. G., Loth, E., & EU-AIMS LEAP Group (2022). Alexithymia in autism: Cross-sectional and longitudinal associations with social-communication difficulties, anxiety and depression symptoms. Psychological Medicine, 52(8), 1458–1470. https://doi.org/10.1017/S0033291720003244 

    Ostrolenk, A., Gagnon, D., Boisvert, M., Lemire, O., Dick, S. C., Côté, M. P., & Mottron, L. (2024). Enhanced interest in letters and numbers in autistic children. Molecular Autism, 15(1), 26. https://doi.org/10.1186/s13229-024-00606-4 

    Schaeffer, J., Abd El-Raziq, M., Castroviejo, E., Durrleman, S., Ferré, S., Grama, I., Hendriks, P., Kissine, M., Manenti, M., Marinis, T., Meir, N., Novogrodsky, R., Perovic, A., Panzeri, F., Silleresi, S., Sukenik, N., Vicente, A., Zebib, R., Prévost, P., & Tuller, L. (2023). Language in autism: Domains, profiles and co-occurring conditions. Journal of Neural Transmission, 130(3), 433–457. https://doi.org/10.1007/s00702-023-02592-y 

    Westerveld, M. F., Filiatrault-Veilleux, P., & Paynter, J. (2021). Inferential narrative comprehension ability of young school-age children on the autism spectrum. Autism & Developmental Language Impairments, 6, 23969415211035666. https://doi.org/10.1177/23969415211035666 

    Yorke, I., Murphy, J., Rijsdijk, F., Colvert, E., Lietz, S., Happé, F., & Bird, G. (2025). Alexithymia may explain the genetic relationship between autism and sensory sensitivity. Translational Psychiatry, 15(1), 75. https://doi.org/10.1038/s41398-025-03254-1 

     

     

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    Auditory processing disorder (APD), also known as central auditory processing disorder (CAPD), is a disruption in the processing of sound signals in the brain. Some experts have described auditory processing as “what we do with what we hear” (Alanzi, 2023). People with auditory processing difficulties have trouble detecting, focusing on, interpreting, or remembering sound information (Aristidou & Hohman, 2023). Around 70% of students with dyslexia have auditory processing deficits.

    If you work with students or clients who have dyslexia, understanding auditory processing disorder may help you understand and address some of the specific abilities and challenges they face. It may also help you determine whether the behaviors and abilities you’re observing arise from auditory processing disorder, dyslexia, or another neurodevelopmental condition. 

    Some experts recommend screening for auditory processing disorders whenever you’re evaluating a child for a neurodevelopmental condition such as dyslexia (Aristidou & Hohman, 2023).  Identifying these difficulties early in the evaluation process can help you tailor instruction and interventions to address all the underlying factors affecting a student’s ability to read. 

     

    Effects of Auditory Processing Disorder 

    Auditory processing disorder is not a distinct diagnosis within the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition Text Revision (DSM-5-TR). For that reason, there isn’t a list of specific diagnostic criteria for the condition. Impairments in auditory processing can be present on their own, or they may co-occur with neurodevelopmental conditions such as: 

    • dyslexia
    • developmental language disorder (DLD)
    • autism
    • aphasia
    • attention-deficit hyperactivity disorder (ADHD) 

     

    Speechlanguage pathologists often identify auditory processing difficulties as they relate to language. By contrast, audiologists typically identify auditory processing disorders using assessments that measure how the auditory system detects, interprets, and transfers sound information (American Speech Language and Hearing Association, n.d.)

     
     

     

    For students with auditory processing disorders, it can be harder to: 

    • understand speech in noisy settings
    • determine where a sound is located
    • recognize sound patterns
    • remember auditory information
    • sense the timing of sounds
    • follow complicated sets of directions
    • comprehend and respond to fast speech
    • pay attention to speech for longer periods
    • learn from verbal communication without visual cues 

    These challenges can be present with or without hearing loss, and they can lead to learning difficulties, frustration, a sense of isolation, and anxiety.  

     

    Auditory Processing and Learning to Read 

    The ability to read begins with understanding spoken language. Most children develop this ability without having to be taught; they simply listen to the language spoken around them. One part of this innate process is learning to detect breaks in the flow of sound—the places where phonemes, syllables, and words start and stop. Children also learn what the sound breaks mean.

    From infancy, children can usually sense differences in the pitch and duration of a sound, even when sounds are changing quicklyTypically, babies can perceive the rising and falling in speech—even in noisy places. They’re especially adept at recognizing the sounds of their primary language.

    The ability to hear a sound and identify it as speech is foundational to learning to read. That’s because when we learn to read, we practice connecting individual speech sounds (phonemes) to written letters that represent those sounds (graphemes). This process, which is sometimes called orthographic mapping, doesn’t happen quickly or easily for children with auditory processing issues.

    Researchers use mismatch negativity tasks to measure auditory processing abilities in children and adults with dyslexia. In these tasks, people are asked to identify which sounds differ in a patterned sequence of sounds. Studies have repeatedly shown that people with dyslexia react more slowly and with less accuracy in these tasks, whether the sounds have a different tone, frequency, or intensity. Researchers think these difficulties may be related to the phonological awareness deficits that are often seen in dyslexia (Gu & Bi, et al., 2020)  

     

    Learn more about how babies process sound here

     

    Speech Sounds in Noise 

    The connections between auditory processing and reading abilities have been studied for some time. Studies have shown that auditory processing, especially the ability to process speech sounds in noisy conditions, is a reliable predictor for the development of literacy skills. In 2015, researchers looked at the brain-behavior connections of 37 four-year-old students and found that those who could accurately identify consonants in noise had better scores in these early literacy skills:

    • memory for spoken sentences
    • rapid naming  

    One year later, researchers tested phonological processing skills in the same group of students and found that their original auditory processing scores also predicted their abilities in sight word reading, spelling, and overall reading competence. Based on these findings, researchers said the ability to identify consonants in noise was a reliable biomarker for difficulties in early literacy skills.

    In the same study, researchers looked at school-age children and found that the ability to accurately “code” consonants in noise predicted scores in these literacy skills: 

    • reading competence
    • sight word reading
    • non-word reading
    • spelling
    • oral reading efficiency
    • phonological processing

    In this study, the ability to identify consonants in noisy conditions predicted which older students had a diagnosis of specific impairment of reading, or dyslexia (White-Swoch et al., 2015). 

     

    It’s important to note that the ability to process sound cues in noisy environments keeps developing into adulthood, so difficulties in early childhood may improve. There’s evidence that this skill matures quickly until around age nine (Bertels et al., 2023).  

     

    Download our Dyslexia Assessment Tool Kit here.

     

    Amplitude Rise Times 

    Researchers have also found a link between another auditory processing measurement and dyslexia. A 2025 study looked at auditory processing in 78 school-age children with dyslexia and 32 school-age children with typical development. Researchers focused on one listening skill: distinguishing amplitude rise times.  

     

    Amplitude rise time is the amount of time it takes a sound wave to reach its peak. People of all ages use it to distinguish speech from other kinds of sound, and to tell when each unit of speech starts and stops. Amplitude rise times help us pick up on the rhythms in speech.

     

    In this study, researchers found that people with developmental dyslexia had trouble detecting amplitude rise times. Difficulty with amplitude rise times was also linked to impairments in reading abilities. These difficulties were connected to differences in brain structures. Brain imaging showed that students who were better at detecting differences in amplitude rise times had more folds in an area of the brain known as the superior temporal gyrus (Qi et al., 2025). 

     

    Tone Perception 

    People with dyslexia may also perceive tone differently than those with typical development. In a 2022 study, researchers looked at the ability to distinguish between four different tones of Mandarin speech. They found that students with dyslexia had a harder time telling the difference between high and low tones. Students with dyslexia also showed differences in musical tasks, singing tasks, Mandarin pronunciation tasks, and tasks that required them to recognize sound-syllable tones. It took students with dyslexia longer to perform some of these tasks (Christiner et al., 2022). 

    Researchers look at tone because the ability to pick up on subtle differences in the sounds within words is key to learning how to read and spell.

     

    Auditory Working Memory 

    Working memory is the ability to remember information you need while completing a task. Some researchers view working memory as a cluster of related skills rather than a single ability. Two components of working memory that are especially important to the development of early literacy are the phonological loop and the visuospatial sketchpad. 

    The phonological loop allows you to store the sounds of a letter or word briefly, and to silently rehearse those sounds. The visuospatial sketchpad allows you to recognize the shape of letters and remember their position in a word. Both abilities operate as children learn to map sounds to letters, remember spelling patterns, and find meaning in texts (Schvartsman & Shaul, 2023).

    Auditory memory is often disrupted in children with auditory processing difficulties (Drosos et al., 2024). Researchers have also found that teens with auditory processing difficulties have trouble with working memory (Jain et al., 2023). The connections between dyslexia, auditory processing, and working memory need to be clarified by further research.  

     

    Learn more about conditions that co-occur with dyslexia here.

     

     

    Key Message  

    Auditory processing deficits can make it harder for people to learn spoken language. They can keep people from being able to detect breaks and subtle changes in sound, including variations in tone. They can also impact the ability to learn to read, since reading depends in part on speech and language skills.

    People with auditory processing disorder may have trouble identifying some letter and word sounds and may have to work harder to link sounds to the letters that represent them. Since many children and adults with dyslexia have auditory processing difficulties, it’s important to assess auditory skills as part of a holistic dyslexia evaluation.  

     

     

     

     

     

    Research and Resources:

     

    Alanazi, A. A. (2023). Understanding auditory processing disorder: A narrative review. Saudi Journal of Medicine & Medical Sciences, 11(4), 275–282. https://doi.org/10.4103/sjmms.sjmms_218_23

    American Speech Language Hearing Association. (n.d.). Central auditory processing disorder. https://www.asha.org/practice-portal/clinical-topics/central-auditory-processing-disorder/

    Aristidou, I.L., Hohman, M.H. (Updated 2023, March 1). Central Auditory Processing Disorder. In: StatPearls. Treasure Island (FL) https://www.ncbi.nlm.nih.gov/books/NBK587357/

    Bertels, J., Niesen, M., Destoky, F., Coolen, T., Vander Ghinst, M., Wens, V., Rovai, A., Trotta, N., Baart, M., Molinaro, N., De Tiège, X., & Bourguignon, M. (2023). Neurodevelopmental oscillatory basis of speech processing in noise. Developmental Cognitive Neuroscience, 59, 101181. https://doi.org/10.1016/j.dcn.2022.101181

    Christiner, M., Serrallach, B. L., Benner, J., Bernhofs, V., Schneider, P., Renner, J., Sommer-Lolei, S., & Groß, C. (2022). Examining individual differences in singing, musical and tone language ability in adolescents and young adults with dyslexia. Brain Sciences, 12(6), 744. https://doi.org/10.3390/brainsci12060744

    Drosos, K., Papanicolaou, A., Voniati, L., Panayidou, K., & Thodi, C. (2024). Auditory processing and speech-sound disorders. Brain Sciences, 14(3), 291. https://doi.org/10.3390/brainsci14030291

    Gu, C., & Bi, H. Y. (2020). Auditory processing deficit in individuals with dyslexia: A meta-analysis of mismatch negativity. Neuroscience and Biobehavioral Reviews, 116, 396–405. https://doi.org/10.1016/j.neubiorev.2020.06.032

    Jain, C., Ghosh, P. G. V., Chetak, K. B., & Lakshmi, A. (2023). Relationship between central auditory processing abilities and working memory during adolescence. Indian Journal of Otolaryngology and Head and Neck Surgery, 75(1), 1–7. https://doi.org/10.1007/s12070-022-03126-w

    Qi, T., Mandelli, M. L., Pereira, C. L. W., Wellman, E., Bogley, R., Licata, A. E., Chang, E. F., Oganian, Y., & Gorno-Tempini, M. L. (2024). Anatomical and behavioral correlates of auditory perception in developmental dyslexia. Brain, 148(3), 833–844. https://doi.org/10.1093/brain/awae298

    Shvartsman, M., & Shaul, S. (2023). The role of working memory in early literacy and numeracy skills in kindergarten and first grade. Children (Basel, Switzerland), 10(8), 1285. https://doi.org/10.3390/children10081285

    White-Schwoch, T., Woodruff Carr, K., Thompson, E. C., Anderson, S., Nicol, T., Bradlow, A. R., Zecker, S. G., & Kraus, N. (2015). Auditory processing in noise: A preschool biomarker for literacy. PLoS Biology, 13(7), e1002196. https://doi.org/10.1371/journal.pbio.1002196 

     

     

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    Having one or more focused, intensive interests is considered a core characteristic of autism. But for many years, experts seemed to know less about the special interests of autistic girls than they did about the stereotypical interests of boys. Researchers hope that the growing body of knowledge about autism in women and girls will improve our ability to identify autism and better support people in finding success and satisfaction in their lives.  

     

    Why RestrictiveMay Not Be the Best Descriptor 

    The phrase “restrictive interests” appears in the diagnostic language in the Diagnostic and Statistical Manual of Mental Disorders, Text Revision (DSM 5-TR), but it doesn’t necessarily capture the experience of many autistic women and girls. Labels such as “obsession” and “fixation” also carry negative connotations. Words like “fascination” and “passion” may come closer to capturing the deep joy and intense focus these interests inspire.  

    Here’s what some autistic women and their advocates say: Special interests don’t feel restrictive at all. By contrast, special interests can feel expansive. They may actually integrate various aspects of people’s lives by connecting experiences at school, in extra-curricular activities, in social lives, and at work.  

    Special interests can give people benefits like the following: 

    • a coping mechanism or self-care strategy to regulate emotion 
    • a subject or a world to understand and organize when much of the neurotypical environment may feel arbitrary
    • a way of connecting with others who share similar interests
    • a source of profound accomplishment and enjoyment 

    For some people, special interests eventually become a field of professional expertise. In a 2020 UC Davis MIND Institute panel discussion on “Life on the Spectrum: Women Sharing Their Unique Experiences,” computational biologist Lisa Malins explained, “Our intense interests bring us so much joy, and they can even translate into a career…even interests that might not seem to be career-related on the surface. I had a strong interest in video games first, and that led me to a gaming community that introduced me to HTML, which ultimately led me to bioinformatics, which is the career I’m currently in” (Malins, 2022, 28:08). 

    Her colleagues have expressed envy that she began developing her coding skills in childhood. She says, “Honestly, I have my autism to thank for that. I’m sure my parents got annoyed with me talking their ears off about Nintendo games, but because they gave me that space, it allowed that domino effect to occur that led me to my career field. And I think, in general, passion creates more passion” (Malins, 2022, 28:45). 

     

     

    What Does Research Say About Special Interests of Autistic Women and Girls? 

    Studies show that the ways autistic individuals engage with their special interests are mostly the same, regardless of sex and gender. Eight main “modalities” have been identified: 

    • speaking or thinking primarily about the area of interest
    • creating
    • seeking information
    • memorizing
    • collecting
    • attaching
    • seeking sensation
    • self-soothing (Brown et al., 2024) 

     

    Quantity and Quality of Special Interests 

    As to the number of special interests, a 2022 literature review found that girls tend to have fewer or “less pronounced” special interests than boys. Among autistic girls and women, special interests tend to be less intense in childhood and more intense during the teen years (Bourson & Prevost, 2022). 

    Researchers have described the special interests of autistic women and girls as more socially acceptable than some of the subjects that may interest autistic boys (Simcoe et al., 2022) Special interests in horses and celebrities, for example, align closely with the interests of many neurotypical girls, so they may be less likely to draw attention from teachers, parents, or evaluators 

    Some researchers have suggested that choosing areas of interest that are considered gender-appropriate or socially acceptable may be “interlaced with camouflage and imitating behaviour” (Simcoe et al., 2022)  

    Clinical developmental psychologist Marie Hooper, PhD, a late-diagnosed autistic and ADHD clinician, explained the risk of misdiagnosis linked to special interests in a 2024 webinar for Autism Ontario titled “Her Spectrum: Navigating the Unique Experiences & Needs of Autistic Girls & Women.” 

    “That’s why these girls are being missed,” Hooper said, “because their special interests are socially acceptable. If you say, ‘My daughter reads four chapter books a day,’ great! She’s a great reader! She’s going to do so well” (Hooper, 2024, 27:39). 

    Hooper said it can be more informative to look at how someone interacts with their special interest, as well as the degree of interest a person shows. An autistic girl might collect Barbies or My Little Pony figures, arranging them in a certain way, or dressing and re-dressing them, but without using them in imaginative play. “We have a lot of collecting and not so much engaging in play,” she notes (Hooper, 2024, 20:44) 

    As an example of intensity, Hooper described a student with a special interest in Taylor Swift, saying she was “a Swiftie through and through.”  

    “She has learned speeches that Taylor has given. She has learned how she speaks to people,” Hooper said. “Even when her mom says, at the end of the day, ‘Okay, it’s Taylor time!’…she will go back to studying videos of Taylor. She really wants to mimic her (Hooper, 2024, 22:17). 

     

    Areas of Special Interest 

    In a recent study involving 1,992 autistic children and teens, researchers used the Special Interests Survey to explore differences in special interests between autistic boys and girls. More girls than boys in that study had special interests in these areas: 

    • animals
    • art
    • crafts
    • music
    • reading
    • writing 

    Across sexes and genders, the most common areas of special interest were these: 

    • TV and movies
    • attachment to certain objects
    • music 

    These categories are broad; more research is needed to understand whether there are sex and gender differences in the types of music or characters that interest different groups of people.  

    In this study, parents characterized certain areas of special interest as “unusual” for both boys and girls:  

    • facts about things
    • attachment to certain items
    • schedules
    • numbers 

    Parents also rated an interest in psychology in the top five most “unusual” among girls.  

     

    Why Should We Keep Studying the Special Interests of Autistic Girls and Women?  

    Understanding the nature of special interests is important for several reasons.  

    • When families, clinicians, and educators recognize intense special interests, they may be able to identify autism sooner and with greater accuracy. 
    • Special interests can point to strengths, skills, and coping strategies.
    • Special interests can be leveraged to raise engagement in academic, social, and therapeutic pursuits.
    • Sharing in and supporting special interests can improve family and social connections. 
     

     

    Key Message  

    Special interests are topics autistic girls and women study and explore with great passion. While having one or more intense special interest is included in the diagnostic criteria for autism, special interests may be seen as positive rather than negative from the perspective of an autistic individual 

    On one hand, special interests foster joy and a sense of achievement. They can also spark social interactions and help people recover from stressful situations. On the other hand, because of their intensity, special interests may conflict with time constraints and social norms in some situations. 

    The special interests of autistic girls are often seen as more socially acceptable than the stereotyped interests associated with autistic boys, which may lead to missed autism diagnoses. Research into the characteristics of autism in girls and women is ongoing. The more we learn about special interests, the better we can become at identifying autism and building responsive support systems for autistic girls and women.  

     

     

     

    Research and Resources:

     

    Brown, C. E., Bernardin, C. J., Beauchamp, M. T., Kanne, S. M., & Nowell, K. P. (2024). More similar than different: Characterizing special interests in autistic boys and girls based on caregiver report. Autism Research, 17(11), 2333–2345. https://doi.org/10.1002/aur.3216 

    Brown, C. E., Collins, T., Foy, R. K., Bonish, K. E., Ramsey, T. E., Nowell, K. P., Bernardin, C. J., & Kanne, S. M. (2024). The how rather than the what: A qualitative analysis of modalities and caregiver descriptions of special interests in autistic youth. Journal of Autism and Developmental Disorders, 10.1007/s10803-024-06501-4. Advance online publication. https://doi.org/10.1007/s10803-024-06501-4 

    Hooper, J. (2024). Autism Ontario. Her Spectrum: Navigating the Unique Experiences of Autistic Girls & Women. https://www.youtube.com/watch?v=bLMVNJki9co 

    Malins, L. (2020). U. C. Davis MIND Institute. Life on the Spectrum: Women Sharing Their Unique Experiences (28:08). https://www.youtube.com/watch?v=o6NFgyOVG-4 

    Simcoe, S. M., Gilmour, J., Garnett, M. S., Attwood, T., Donovan, C., & Kelly, A. B. (2023). Are there gender-based variations in the presentation of Autism amongst female and male children? Journal of Autism and Developmental Disorders, 53(9), 3627–3635. https://doi.org/10.1007/s10803-022-05552-9 

     

     

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    Dyslexia doesn’t arise from a single clear cause. Researchers can’t trace it back to a single gene, brain structure, or nerve network. Similarly, dyslexia doesn’t have the same effects and expressions in everyone with the condition. That’s because each person has a unique combination of genetic and environmental risk and protective factors.

    One environmental factor drawing increased attention from dyslexia researchers is chronic early life stress. This type of ongoing stress, often related to childhood trauma or adverse childhood events, can affect a growing brain in ways that make dyslexia and reading difficulties more likely.

    Here’s an overview of the connection between early life stress and a higher dyslexia risk.  

     

    Trauma, Adverse Events, and Stress

    When discussing childhood trauma, it's worth differentiating between adverse childhood events and early life stress. 

     

    Adverse Events 

    The National Child Traumatic Stress Network (NCTSN) defines a traumatic event as one that is “frightening, dangerous, or violent” and that threatens a child’s “life or bodily integrity” (NCTSN, n.d.). Witnessing a tragedy, having a serious illness, going through a family separation, and experiencing violence are all considered traumatic.

    Children respond differently to such events. Their own personal traits have something to do with their ability to bounce back. Their resilience is also influenced by factors like cultural backgrounds and family resources.  

     

    Researchers distinguish between two different types of adverse events: threats (when something dangerous happens to a child, such as abuse) and deprivations (when something good doesn’t happen in a child’s life, such not having nutritious food). Both types of early life stress have been shown to change brain structures and brain connectivity (Smith & Pollack, 2020).

     

    Stress 

    Early life stress is a broader category of negative happenings that includes exposure to “nutritional restriction, abuse, neglect, and limited family resources” (Smith & Pollak, 2020) Some experts also include exposure to environmental toxins, as well as to cultural stressors such as racism and discrimination. Exposures like these may be one-time events or lasting experiences. It’s important to note that an adverse event doesn’t have to be life-threatening to have profound effects on a child’s development. 

     

    Two Reactions to Chronic Stress 

    Stress is a normal part of life, and stress responses can be an effective way to maintain balance between a person and the world around them.

    Under short-term stress, the body activates learning and memory centers in the brain, prompting sharper attention and enhancing the brain’s neuroplasticity, which is its ability to reprogram itself to adapt to new information (Kershner, 2020). But when stress goes on too long, or when stress is more than a child is personally equipped to tolerate, the brain diverts some of its resources away from cognitive processes to manage the flood of stress chemicals. The brain is forced to adapt.

    These adaptations generally take one of two forms: a vigilant response or a habituation response 

     

    Vigilant Response

    The brain and body adjust to severe stress by enabling a child to cope with an up-regulated (hyper-activated) central autonomic network (CAN) Anxiety is higher, some brain structures may mature more quickly, and greater social skills are supported. Vigilant responses are common, but they can lead to a higher risk of mental and physical health issues both in childhood and later in life. Researchers in the field of evolutionary developmental biology think the vigilant response may be connected to ordinary, “garden-variety” reading difficulties unconnected to dyslexia. 

     

    Habituation Response

    In situations where stress is persistent but low-level, or where a child doesn’t have the personal resources to cope with it, the brain down-regulates the CAN, dampening or buffering the body’s response to stress. Habituation can look like dulled emotions, loss of motivation, delays in development, and difficulty with phonological skills, which are essential to reading. Research points to the habituation response as possibly being an underlying factor in the development of dyslexia. In other words, dyslexia may be the result of the brain’s complex adaptations to chronic stress (Kershner, 2020). 

     

    Stress, Reading Difficulties, and Dyslexia 

    Here’s a brief overview of the effects of chronic stress on parts of the brain involved in learning to read:  

     

    The HPA Axis

    The body’s stress response is managed by the CAN. That network has two primary pathways: the hypothalamic-pituitary-adrenal (HPA) axis, which prompts the release of the stress hormone cortisol, and the locus coeruleus-norepinephrine (LC/NE) system, which releases another stress-related hormone, norepinephrine. Both pathways support stress management and cognitive functions like learning to read.  

     

    Learning to read requires the brain to build neural connections from the part of the brain that processes visual information to the part of the brain that processes speech sounds. A new network must grow between the pre-existing visual and sound circuits. That new zone is known as the visual word formation area, sometimes called the “brain’s letterbox.”

     

     

    A balanced HPA axis helps the brain to repurpose existing neural circuits to make print-sound connections A balanced LC/NE system cues the brain to pay attention to letter-sound correspondence happening in the visual word formation area of the brain. When the two pathways of the CAN are balanced, learning to read is well-supported. 

    But when chronic stress overloads a child’s brain, the CAN may become dysregulated (Kershner, 2024). In a study involving 81 children, 38 of whom had been diagnosed with dyslexia, researchers found that the HPA axis under-responded to psychosocial stress in children with dyslexia (Espin et al., 2019). That’s just one connection. More research is needed to clarify how a dysregulated HPA axis contributes to reading difficulties. 

     

    Brain-Derived Growth Factor 

    Brain-derived growth factor (BDNF) is lower in children with dyslexia compared to their neurotypical peers (Elhadiddy et al., 2023). BDNF is a protein known to regulate the growth and plasticity of neurons and synapses in parts of the brain involved in reading. It’s crucial for learning, memory, and visual motor integrating abilities—all of which are part of learning to read (Elhadiddy et al., 2023).

    Researchers have linked BDNF to phonological working memory, which is the ability to pay attention to sounds, holding them in memory as we sound out words. We also use phonological working memory to pay attention to and remember information as we build meaning from words and phrases (Jasińska et al., 2016).

    Studies show that chronic stress depletes BDNF; thus, researchers think low BDNF might be a reliable biomarker for dyslexia. More research needs to be done to understand the relationship between the two.  

     

    Auditory Processing, Stress, and Dyslexia

    Brain centers that process sound can be affected by early life stress and childhood trauma. In animal studies, researchers found that early life stress damaged the ability to hear short gaps in sound. Stress also impaired the ability to perceive and respond to rapidly changing sounds. Those skills are not only critical for perceiving speech (Ye et al., 2023), they are also really important in learning to read.

    In fact, one of the key features of dyslexia is difficulty with phonological awareness, which involves the processing of speech sounds. Brain imaging studies have highlighted differences in brain areas that process letter and speech sounds in children with dyslexia (Di Pietro et al, 2023).

    Researchers are still learning about the ways chronic stress affects the development of auditory processing.  

     

    What Practitioners Can Do 

    For the most part, educators and clinicians cannot control chronic stress in the life of a child. But there are steps we can take to identify dyslexia early and modify learning environments to strengthen protective factors for dyslexia and early life stress

    • Increase awareness about the role of stress in the development of reading problems and dyslexia.
    • Screen all children for dyslexia risk early in preschool and elementary grades.
    • Conduct comprehensive evaluations for children at higher risk for dyslexia, including screenings for mental health, sensory processing, oral language skills, and auditory processing where appropriate.
    • Create predictable routines at home and at school, since predictability changes a person’s stress responses (Smith & Pollack, 2020).
    • Offer choices and involve children in decision-making to enhance a sense of control over their environment.
    • Encourage communication, empower personal expression, and validate children’s feelings.
    • Build supportive relationships with children and families, since close relationships at school is a protective factor for students with dyslexia and those with early life stress.
    • Ensure evidence-based reading instruction for all students.

    Childhood trauma and early life stress don’t always lead to reading difficulties and dyslexia, but they can increase the risk for many children, especially when stress is persistent during peak developmental periods. Practitioners can help by understanding how chronic stress affects the development of reading centers in the brain and taking steps to support resilience and learning.  

     

     

     

    Research and Resources:

     

    Di Pietro, S. V., Karipidis, I. I., Pleisch, G., & Brem, S. (2023). Neurodevelopmental trajectories of letter and speech sound processing from preschool to the end of elementary school. Developmental Cognitive Neuroscience, 61, 101255. https://doi.org/10.1016/j.dcn.2023.101255

    Elhadidy, M. E., Kilany, A., Gebril, O. H., Nashaat, N. H., Zeidan, H. M., Elsaied, A., Hashish, A. F., & Abdelraouf, E. R. (2023). BDNF Val66Met polymorphism: Suggested genetic involvement in some children with learning disorder. Journal of Molecular Neuroscience, 73(1), 39–46. https://doi.org/10.1007/s12031-022-02095-7

    Espin, L., García, I., Del Pino Sánchez, M., Román, F., & Salvador, A. (2019). Effects of psychosocial stress on the hormonal and affective response in children with dyslexia. Trends in Neuroscience and Education, 15, 1–9. https://doi.org/10.1016/j.tine.2019.03.001 

    Jasińska, K. K., Molfese, P. J., Kornilov, S. A., Mencl, W. E., Frost, S. J., Lee, M., Pugh, K. R., Grigorenko, E. L., & Landi, N. (2016). The BDNF Val66Met polymorphism influences reading ability and patterns of neural activation in children. PloS One, 11(8), e0157449. https://doi.org/10.1371/journal.pone.0157449

    Kershner J. R. (2020). Dyslexia as an adaptation to cortico-limbic stress system reactivity. Neurobiology of Stress, 12, 100223. https://doi.org/10.1016/j.ynstr.2020.100223

    Kershner J. R. (2024). Early life stress, literacy and dyslexia: An evolutionary perspective. Brain Structure & Function, 229(4), 809–822. https://doi.org/10.1007/s00429-024-02766-8

    National Child Traumatic Stress Network. (n.d.). About child traumahttps://www.nctsn.org/what-is-child-trauma/about-child-trauma

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